General Social Survey - Caregiving and Care Receiving, 2017

Social Voluntary Type Surveys (SVTS) - Question identifier:SVTS_R01

Why we conduct this survey?

Social Voluntary Type Surveys (SVTS) - Question identifier:SVTS_R02

The purpose of this pilot survey is to collect information on Canadians who provide care to family and friends living with long-term health conditions. Questions are also asked about those who receive this care and about the challenges both groups face. Information on the general health of all Canadians will also be collected. Data from this survey will help us to better understand the needs of these individuals, and allow policy makers to design appropriate programs and services to better support them.

Your information may also be used by Statistics Canada for other statistical and research purposes.

Although your participation is voluntary, your cooperation is important so that the information collected will be as accurate and complete as possible.

Social Voluntary Type Surveys (SVTS) - Question identifier:SVTS_R03

Other important information

Social Voluntary Type Surveys (SVTS) - Question identifier:SVTS_R04

How are we authorized to collect this information?

Social Voluntary Type Surveys (SVTS) - Question identifier:SVTS_R05

Collected under the authority of the Statistics Act, Revised Statutes of Canada, 1985, Chapter S-19.

Social Voluntary Type Surveys (SVTS) - Question identifier:SVTS_R06

Your answers are confidential

Social Voluntary Type Surveys (SVTS) - Question identifier:SVTS_R07

Your answers are collected under the authority of the Statistics Act and will be kept strictly confidential.

Social Voluntary Type Surveys (SVTS) - Question identifier:SVTS_R08

Record linkages

Social Voluntary Type Surveys (SVTS) - Question identifier:SVTS_R09

To enhance the data from this survey and to reduce the reporting burden, Statistics Canada will combine the information you provide with information from the tax data of all members of your household. Statistics Canada may also combine the information you provide with other survey or administrative data sources.

Telephone details (TEL) - Question identifier:TEL_Q02

Does the telephone number ^CURR_TELEPHONE belong to any member of your household, including yourself?

• 1: Yes
• 2: No

Telephone details (TEL) - Question identifier:TEL_Q03

Is ^CURR_TELEPHONE a cellular phone number?

• 1: Yes
• 2: No

Telephone details (TEL) - Question identifier:TEL_Q04

Is this phone number for a private home or personal phone, a business[or an institution/, an institution or secondary (or seasonal) residence]?

• 1: Private home or personal phone
• 2: Business
• 3: Both private home or personal phone and business
• 4: Institution
• 5: Secondary (or seasonal) residence
• 6: Collective dwelling

Telephone details (TEL) - Question identifier:TEL_Q05A

Please specify the type of collective dwelling you live in.

Long Answer Length = 80

Telephone details (TEL) - Question identifier:TEL_Q05B

What is the total number of people living in this collective dwelling?

Min = 0; Max = 999

Telephone details (TEL) - Question identifier:TEL_Q06

Does anyone use this telephone number as a private home or personal phone number?

• 1: Yes
• 2: No

Telephone details (TEL) - Question identifier:TEL_Q07

Excluding all numbers used for computer, fax or business use only, how many different phone numbers are there in your household?

• 01: 1
• 02: 2
• 03: 3
• 04: 4
• 05: 5
• 06: 6
• 07: 7
• 08: 8
• 09: 9 or more

Telephone details (TEL) - Question identifier:TEL_Q08

How many of these are cellular phone numbers?

• 01: 1
• 02: 2
• 03: 3
• 04: 4
• 05: 5
• 06: 6
• 07: 7
• 08: 8
• 09: 9 or more
• 10: None

Postal Code (RPC) - Question identifier:RPC_Q01A

In which province or territory do you live?

• 10: Newfoundland and Labrador
• 11: Prince Edward Island
• 12: Nova Scotia
• 13: New Brunswick
• 24: Quebec
• 35: Ontario
• 46: Manitoba
• 47: Saskatchewan
• 48: Alberta
• 59: British Columbia
• 60: Yukon
• 61: Northwest Territories
• 62: Nunavut
• 77: Outside of Canada

Postal Code (RPC) - Question identifier:RPC_Q01B

To determine which geographic region you live in, please provide your postal code.

Long Answer Length = 6

Postal Code (RPC) - Question identifier:RPC_Q03

Please confirm your postal code. Is it ^RPC_Q01B?

• 1: Yes
• 2: No

Postal Code (RPC) - Question identifier:RPC_Q04

What is your correct postal code?

Long Answer Length = 6

Age-order selection (AOS) - Question identifier:AOS_Q01

Including yourself, how many people 15 years of age or older live in your household?

• 1: 1 person
• 2: 2 people
• 3: 3 or more people

Age-order selection (AOS) - Question identifier:AOS_R03A

The [older/younger] member has been selected to participate in the survey.

Age-order selection (AOS) - Question identifier:AOS_Q03A

What is their first and last name?
First name

Long Answer Length = 80

Age-order selection (AOS) - Question identifier:AOS_Q03B

What is their first and last name?
Last name

Long Answer Length = 80

Age-order selection (AOS) - Question identifier:AOS_R05A

The [oldest/youngest] member among those has been selected to participate in the survey

Age-order selection (AOS) - Question identifier:AOS_Q05A

What is their first and last name?
First name

Long Answer Length = 80

Age-order selection (AOS) - Question identifier:AOS_Q05B

What is their first and last name?
Last name

Long Answer Length = 80

Age-order selection (AOS) - Question identifier:AOS_Q10AA

What are the names of the household members in order of [oldest to youngest/youngest to oldest].
First name

Long Answer Length = 80

Age-order selection (AOS) - Question identifier:AOS_Q10AB

What are the names of the household members in order of [oldest to youngest/youngest to oldest].
Last name

Long Answer Length = 80

Age-order selection (AOS) - Question identifier:AOS_Q10BA

What are the names of the household members in order of [oldest to youngest/youngest to oldest].
First name

Long Answer Length = 80

Age-order selection (AOS) - Question identifier:AOS_Q10BB

What are the names of the household members in order of [oldest to youngest/youngest to oldest].
Last name

Long Answer Length = 80

Age-order selection (AOS) - Question identifier:AOS_Q10CA

What are the names of the household members in order of [oldest to youngest/youngest to oldest].
First name

Long Answer Length = 80

Age-order selection (AOS) - Question identifier:AOS_Q10CB

What are the names of the household members in order of [oldest to youngest/youngest to oldest].
Last name

Long Answer Length = 80

Age-order selection (AOS) - Question identifier:AOS_R15

[^AOS_Q10BA ^AOS_Q10BB/^AOS_Q10CA ^AOS_Q10CB] has been selected to participate in the survey.

Age-order selection (AOS) - Question identifier:AOS_R16A

You have been selected to participate in the survey.

Age-order selection (AOS) - Question identifier:AOS_Q16A

What is your first and last name?
First name

Long Answer Length = 80

Age-order selection (AOS) - Question identifier:AOS_Q16B

What is your first and last name?
Last name

Long Answer Length = 80

Target Respondent (TR) - Question identifier:TR_Q01

May I speak to [AOS_Q03A/AOS_Q05A/AOS_Q10BA/AOS_Q10CA/AOS_Q16A] [AOS_Q03B/AOS_Q05B/AOS_Q10BB/AOS_Q10BC/AOS_Q16B]?

• 1: Yes, speaking to respondent
• 2: Yes, respondent available
• 3: No, respondent unable to complete this survey
• 4: No, respondent not available at this time

Alternate Telephone Contact (ATC) - Question identifier:ATC_Q01

Is there a better telephone number at which I can reach [AOS_Q03A/AOS_Q05A/AOS_Q10BA/AOS_Q10CA/AOS_Q16A] [AOS_Q03B/AOS_Q05B/AOS_Q10BB/AOS_Q10BC/AOS_Q16B]?

• 1: Yes
• 2: No

Alternate Telephone Contact (ATC) - Question identifier:ATC_Q02

Could you provide the telephone number?

Long Answer Length = 10

Proxy (PRX) - Question identifier:PRX_Q01

What is the reason [AOS_Q03A/AOS_Q05A/AOS_Q10BA/AOS_Q10CA/AOS_Q16A] is unable to complete this survey?

• 1: Respondent does not speak English or French (Language barrier)
• 2: Respondent unable to answer because of a health condition, a physical or mental disability, or problems related to aging
• 3: Respondent absent for the duration of the collection period
• 4: Other

Proxy (PRX) - Question identifier:PRX_Q02

Is there someone 15 years or older who could provide us with some information on behalf of [AOS_Q03A/AOS_Q05A/AOS_Q10BA/AOS_Q10CA/AOS_Q16A] [AOS_Q03B/AOS_Q05B/AOS_Q10BB/AOS_Q10BC/AOS_Q16B]?. We would like to ask this person questions about care [AOS_Q03A/AOS_Q05A/AOS_Q10BA/AOS_Q10CA/AOS_Q16A] may have received or may have provided to family or friends.

• 1: Yes
• 2: No

Proxy (PRX) - Question identifier:PRX_Q03A

What is the first name of this person?

Long Answer Length = 80

Proxy (PRX) - Question identifier:PRX_Q03B

What is the last name of this person?

Long Answer Length = 80

Proxy (PRX) - Question identifier:PRX_Q06

May I speak with ^PRX_Q03A ^PRX_Q03B?

• 1: Yes, speaking to information provider
• 2: Yes, information provider available
• 3: No, information provider not available to complete this survey
• 4: No, information provider not available at this time

Proxy (PRX) - Question identifier:PRX_Q07

Can you give me a telephone number for ^PRX_Q03A ^PRX_Q03B?

• 1: Yes
• 2: No

Proxy (PRX) - Question identifier:PRX_Q07A

Enter the telephone number, including area code.

Long Answer Length = 10

Roster (RRS) - Question identifier:RRS_R01

The next few questions ask for important information about the people in [^TEMP_FNAME's/your] household.

Roster (RRS) - Question identifier:RRS_Q12

Including [^TEMP_FNAME/yourself], how many persons are staying at this address?

• 01: 1
• 02: 2
• 03: 3
• 04: 4
• 05: 5
• 06: 6
• 07: 7
• 08: 8
• 09: 9
• 10: 10
• 11: 11
• 12: 12
• 13: 13
• 14: 14
• 15: 15
• 16: 16
• 17: 17
• 18: 18
• 19: 19
• 20: 20

Roster (continued) (RRS2) - Question identifier:RRS2_Q15A

[Please provide [^TEMP_FNAME's/your] first name, last name, age, and sex./Beginning with [^TEMP_FNAME/yourself], please provide the first name, last name, age, and sex of all the people usually living at this address.]
First name

Long Answer Length = 25

Roster (continued) (RRS2) - Question identifier:RRS2_Q15B

[Please provide [^TEMP_FNAME's/your] first name, last name, age, and sex./Beginning with [^TEMP_FNAME/yourself], please provide the first name, last name, age, and sex of all the people usually living at this address.]
Last name

Long Answer Length = 30

Roster (continued) (RRS2) - Question identifier:RRS2_Q15C

[Please provide [^TEMP_FNAME's/your] first name, last name, age, and sex./Beginning with [^TEMP_FNAME/yourself], please provide the first name, last name, age, and sex of all the people usually living at this address.]
Age

Min = 0; Max = 999

Roster (continued) (RRS2) - Question identifier:RRS2_Q15D

Sex

• 1: Male
• 2: Female

Roster (continued) (RRS2) - Question identifier:RRS2_R20

Please verify that [^TEMP_FNAME is/you are] listed first and all of the information is correct.

Roster (continued) (RRS2) - Question identifier:RRS2_R20B

Person [number of the roster instance identified by the response to RRS_Q12, incrementing by 1 number with each additional instance]

Roster (continued) (RRS2) - Question identifier:RRS2_R20C

First name: ^RRS2_Q15A
Last name: ^RRS2_Q15B
Age: ^RRS2_Q15C
Sex: ^RRS2_Q15D

Age without Confirmation (ANCQ) - Question identifier:ANCQ_Q01A

What is your date of birth?
Day

Min = 0; Max = 99

Age without Confirmation (ANCQ) - Question identifier:ANCQ_Q01B

What is your date of birth?
Month

• 01: January
• 02: February
• 03: March
• 04: April
• 05: May
• 06: June
• 07: July
• 08: August
• 09: September
• 10: October
• 11: November
• 12: December

Age without Confirmation (ANCQ) - Question identifier:ANCQ_Q01C

Year

Min = 0; Max = 9999

Age without Confirmation (ANCQ) - Question identifier:ANCQ_Q02

As of today ([THISDATE]), your age is [Age calculated based on the entered date of birth][years/year//months/month/months].
Is that correct?

• 1: Yes
• 2: No

Age without Confirmation (ANCQ) - Question identifier:ANCQ_Q03

What is your age?

Min = 0; Max = 999

Marital Status (MSNC) - Question identifier:MSNC_Q01

What is your marital status?

• 1: Married
• 2: Living common law (Two people of the opposite sex or the same sex who live together as a couple but who are not legally married to each other.)
• 3: Widowed
• 4: Separated
• 5: Divorced
• 6: Single, never married

Relationship to Selected Respondent (RSR) - Question identifier:RSR_Q05

What is the relationship of the following [people/person] to you?

• 01: your [husband/wife]
• 02: your common-law partner
• 03: your [father/mother]
• 04: your [son/daughter] (birth, adopted or step)
• 05: your [brother/sister]
• 06: your foster [father/mother]
• 07: your foster [son/daughter]
• 08: your grand[father/mother]
• 09: your grand[son/daughter]
• 10: your in-law
• 11: other related
• 12: unrelated

Number of children (NLC) - Question identifier:NLC_Q100

How many children do you have?

Min = 0; Max = 99

Labour Market Activities Minimal (LMAM) - Question identifier:LMAM_R01

The following questions concern your activities last week, meaning the week beginning on Sunday and ending Saturday.

Labour Market Activities Minimal (LMAM) - Question identifier:LMAM_Q01

Last week, did you work at a job or business?

• 1: Yes
• 2: No

Labour Market Activities Minimal (LMAM) - Question identifier:LMAM_Q02

Last week, did you have a job or business from which you were absent?

• 1: Yes
• 2: No

Labour Market Activities Minimal (LMAM) - Question identifier:LMAM_Q03

What was the main reason you were absent from work last week?

• 01: [His/Her/Your] illness or disability
• 02: Caring for your children
• 03: Caring for elder relative (60 years of age or older)
• 04: Maternity or parental leave
• 05: Other personal or family responsibilities
• 06: Vacation
• 07: Labour dispute, strike or lockout
• 08: Temporary layoff due to business conditions
• 09: Seasonal layoff
• 10: [He/She/You] have a casual job and no work was available
• 11: [His/Her/Your] work schedule (e.g., you work shift work)
• 12: [He/She/You] are self-employed and no work was available
• 13: Seasonal business (Include self-employed only)

Labour market past year (LPY) - Question identifier:LPY_Q01

In the past 12 months, did you work at a job or business?

• 1: Yes
• 2: No

Labour market past year (LPY) - Question identifier:LPY_Q02

During the past 12 months, what was your main activity?

• 01: Looking for paid work
• 02: Going to school
• 03: Caring for your children
• 04: Household work
• 05: Retired
• 06: Maternity, paternity or parental leave
• 07: Long-term illness
• 08: Volunteering or caregiving other than for your children
• 09: Other

Respondent ever worked (REW) - Question identifier:REW_Q10

Have you ever been employed or self-employed?

• 1: Yes
• 2: No

Respondent ever worked (REW) - Question identifier:REW_Q20

In what year did you last do any paid work?

Min = 0; Max = 9999

Respondent ever worked (REW) - Question identifier:REW_Q30

How old were you when you last did any paid work?

Min = 0; Max = 99

Care receiving by respondent (CAR) - Question identifier:CAR_Q110

The next questions ask about help or care you may have received for a long-term health condition, a physical or mental disability or problems related to aging. This help may come from family, friends, neighbours, paid workers or organizations. It may include help with driving, shopping, housework, personal care or anything else.

A long-term health condition is one that has lasted or is expected to last 6 months or longer.

Include:
• indoor household chores e.g., cleaning, washing, ironing, shopping
• outdoor chores e.g., cutting grass, shovelling, home repairs
• driving care receiver to appointments or to do errands
• banking or financing
• coordinating care needs
• administering medication
• helping with personal care e.g., bathing, cutting nails
• any other activity you received help with.

During the past 12 months, have you received help or care for a long-term health condition or a physical or mental disability?

• 1: Yes
• 2: No

Care receiving by respondent (CAR) - Question identifier:CAR_Q115

During the past 12 months, have you received help for problems related to aging?

• 1: Yes
• 2: No

Main health condition for which respondent received help (PRA) - Question identifier:PRA_Q10

What is the main health condition or problem for which you have received help?

• 01: Arthritis (e.g., rheumatoid arthritis, osteoarthritis, lupus or gout)
• 02: Osteoporosis
• 03: Cardiovascular disease (e.g., angina, heart attack, stroke and hypertension)
• 04: Kidney disease
• 05: Asthma
• 06: Chronic bronchitis, emphysema or chronic obstructive pulmonary disease (COPD)
• 07: Diabetes
• 08: Migraine
• 09: Back problems
• 10: Cancer
• 11: Mental illness (e.g., depression, bipolar disorder, mania or schizophrenia)
• 12: Alzheimer's disease or dementia
• 13: All other neurological diseases (e.g., Parkinson's disease, multiple sclerosis, spina bifida, cerebral palsy)
• 14: Urinary or bowel incontinence
• 15: Digestive disease (e.g., celiac disease, irritable bowel syndrome, stomach ulcers, Crohn's disease)
• 16: Fibromyalgia, chronic fatigue syndrome or multiple chemical sensitivities
• 17: Developmental disability or disorder
• 18: Injury resulting from an accident
• 19: Aging or frailty
• 20: Other

Main health condition for which respondent received help (PRA) - Question identifier:PRA_Q15

Would you say that this condition is mild, moderate or severe?

• 1: Mild
• 2: Moderate
• 3: Severe

Activities for which respondent received help (ARE) - Question identifier:ARE_R05

The next questions ask about the types of help you received for the health condition or problem you just indicated. Here we are talking about help only from family, friends, or neighbours.

Exclude help from paid workers or organizations.

Activities for which respondent received help (ARE) - Question identifier:ARE_Q10

During the past 12 months, have you received help with any of the following activities?
a. Transportation to do shopping, errands, get to medical appointments or social events

• 1: Yes
• 2: No

Activities for which respondent received help (ARE) - Question identifier:ARE_Q20

During the past 12 months, have you received help with any of the following activities?
b. Meal preparation, meal clean-up, house cleaning, laundry or sewing

• 1: Yes
• 2: No

Activities for which respondent received help (ARE) - Question identifier:ARE_Q30

During the past 12 months, have you received help with any of the following activities?
c. House maintenance or outdoor work

• 1: Yes
• 2: No

Activities for which respondent received help (ARE) - Question identifier:ARE_Q40

During the past 12 months, have you received help with any of the following activities?
d. Personal care, such as bathing, dressing, toileting, hair care, or care of nails

• 1: Yes
• 2: No

Activities for which respondent received help (ARE) - Question identifier:ARE_Q50

During the past 12 months, have you received help with any of the following activities?
e. Medical treatments, such as changing bandages, taking medications, or other medical procedures

• 1: Yes
• 2: No

Activities for which respondent received help (ARE) - Question identifier:ARE_Q60

During the past 12 months, have you received help with any of the following activities?
f. Scheduling or coordinating care-related tasks, such as making appointments or hiring professional help

• 1: Yes
• 2: No

Activities for which respondent received help (ARE) - Question identifier:ARE_Q70

During the past 12 months, have you received help with any of the following activities?
g. Banking, bill paying or managing your finances

• 1: Yes
• 2: No

Activities for which respondent received help (ARE) - Question identifier:ARE_Q80

During the past 12 months, have you received help with anything else?

• 1: Yes
• 2: No

Activities for which respondent received help (ARE) - Question identifier:ARE_Q85

Specify other type of help received

Long Answer Length = 80

Hours of help received by respondent (HAR) - Question identifier:HAR_Q10

In an average week, how many hours of care or help did you receive with these activities?

Min = 0; Max = 999

Number of people helping respondent (NPA) - Question identifier:NPA_Q10

During the past 12 months, how many family members, friends or neighbours have helped you with any of the previous activities?

Min = 0; Max = 99

Relationship of people helping respondent (RPA) - Question identifier:RPA_R10B

Relationship

Relationship of people helping respondent (RPA) - Question identifier:RPA_R10C

Number of people

Relationship of people helping respondent (RPA) - Question identifier:RPA_Q10

How many of these ^NPA_Q10 people are your
a. immediate family

Min = 0; Max = 99

Relationship of people helping respondent (RPA) - Question identifier:RPA_Q20

How many of these ^NPA_Q10 people are your
b. extended family

Min = 0; Max = 99

Relationship of people helping respondent (RPA) - Question identifier:RPA_Q30

How many of these ^NPA_Q10 people are your
c. friends and neighbours

Min = 0; Max = 99

Relationship of people helping respondent (RPA) - Question identifier:RPA_R40

Total number of people

Types of people helping respondent (TPA) - Question identifier:TPA_R10B

Sex

Types of people helping respondent (TPA) - Question identifier:TPA_R10C

Number of people

Types of people helping respondent (TPA) - Question identifier:TPA_Q10

How many of these ^NPA_Q10 people were
a. women

Min = 0; Max = 99

Types of people helping respondent (TPA) - Question identifier:TPA_Q15

How many of these ^NPA_Q10 people were
b. men

Min = 0; Max = 99

Types of people helping respondent (TPA) - Question identifier:TPA_R15

Total number of people

Types of people helping respondent (TPA) - Question identifier:TPA_R20B

Activity

Types of people helping respondent (TPA) - Question identifier:TPA_R20C

Number of people

Types of people helping respondent (TPA) - Question identifier:TPA_Q20

At the time they were helping you, how many of these ^NPA_Q10 people were
a. employed

Min = 0; Max = 99

Types of people helping respondent (TPA) - Question identifier:TPA_Q30

At the time they were helping you, how many of these ^NPA_Q10 people were
b. retired

Min = 0; Max = 99

Types of people helping respondent (TPA) - Question identifier:TPA_Q40

At the time they were helping you, how many of these ^NPA_Q10 people were
c. unemployed

Min = 0; Max = 99

Types of people helping respondent (TPA) - Question identifier:TPA_R40

Total number of people

Types of people helping respondent (TPA) - Question identifier:TPA_Q50

At the time they were helping you, how many of these ^NPA_Q10 people were students?

Min = 0; Max = 99

Age of people helping respondent (APA) - Question identifier:APA_R10B

Age

Age of people helping respondent (APA) - Question identifier:APA_R10C

Number of people

Age of people helping respondent (APA) - Question identifier:APA_Q10

How many of these ^NPA_Q10 people were
a. below the age of 19

Min = 0; Max = 99

Age of people helping respondent (APA) - Question identifier:APA_Q20

How many of these ^NPA_Q10 people were
b. 19 to 44

Min = 0; Max = 99

Age of people helping respondent (APA) - Question identifier:APA_Q30

How many of these ^NPA_Q10 people were
c. 45 to 64

Min = 0; Max = 99

Age of people helping respondent (APA) - Question identifier:APA_Q40

How many of these ^NPA_Q10 people were
d. 65 to 79

Min = 0; Max = 99

Age of people helping respondent (APA) - Question identifier:APA_Q50

How many of these ^NPA_Q10 people were
e. 80 years of age or older

Min = 0; Max = 99

Age of people helping respondent (APA) - Question identifier:APA_R60

Total number of people

Receiving emotional support by respondent (RES) - Question identifier:RES_Q10

During the past 12 months, have you received emotional support?

• 1: Yes
• 2: No

Professional help received by activity (PAA) - Question identifier:PAA_R05

The next question ask about help from professionals. By professionals, we mean paid workers or organizations.

Professional help received by activity (PAA) - Question identifier:PAA_Q05

Have you received any types of help or care from professionals for a long-term health condition, a physical or mental disability or problems related to aging?

• 1: Yes
• 2: No

Professional help received by activity (PAA) - Question identifier:PAA_Q10

During the past 12 months, have you received professional help with any of the following activities?
a. Transportation to do shopping, errands, get to medical appointments or social events

• 1: Yes
• 2: No

Professional help received by activity (PAA) - Question identifier:PAA_Q20

During the past 12 months, have you received professional help with any of the following activities?
b. Meal preparation, meal clean-up, house cleaning, laundry or sewing

• 1: Yes
• 2: No

Professional help received by activity (PAA) - Question identifier:PAA_Q30

During the past 12 months, have you received professional help with any of the following activities?
c. House maintenance or outdoor work

• 1: Yes
• 2: No

Professional help received by activity (PAA) - Question identifier:PAA_Q40

During the past 12 months, have you received professional help with any of the following activities?
d. Personal care, such as bathing, dressing, toileting, hair care, or care of nails

• 1: Yes
• 2: No

Professional help received by activity (PAA) - Question identifier:PAA_Q50

During the past 12 months, have you received professional help with any of the following activities?
e. Medical treatments, such as changing bandages, taking medications or other medical procedures

• 1: Yes
• 2: No

Professional help received by activity (PAA) - Question identifier:PAA_Q60

During the past 12 months, have you received professional help with any of the following activities?
f. Scheduling or coordinating care-related tasks such as making appointments or hiring professional help

• 1: Yes
• 2: No

Professional help received by activity (PAA) - Question identifier:PAA_Q70

During the past 12 months, have you received professional help with any of the following activities?
g. Banking, bill paying or managing your finances

• 1: Yes
• 2: No

Professional help received by activity (PAA) - Question identifier:PAA_Q90

During the past 12 months, did a professional provide you with any other type of help?

• 1: Yes
• 2: No

Professional help received by activity (PAA) - Question identifier:PAA_Q100

Specify other type of help

Long Answer Length = 80

Professional help received by activity (PAA) - Question identifier:PAA_Q110

During the past 12 months, did a professional provide you with emotional support?

• 1: Yes
• 2: No

Number of hours of professional help provided to the respondent (DPA) - Question identifier:DPA_Q10

In an average week, how many hours of professional help did you receive with these activities?

Min = 0; Max = 999

Care needed and received by respondent (CNR) - Question identifier:CNR_Q10

In general, did you receive the care or help you needed during the past 12 months? Please think of both professional care, and care from family and friends.

• 1: Yes
• 2: No

Care needed and received by respondent (CNR) - Question identifier:CNR_Q20

Why did you not receive the care or help that you needed?

Long Answer Length = 80

Prefer help from professional (PHP) - Question identifier:PHP_Q10

For the types of help you previously have indicated, would you rather have had professional help than help from family and friends?

• 1: Yes
• 2: No

Prefer help from family (PHF) - Question identifier:PHF_Q10

For the types of help you previouly have indicated, would you rather have had help from family and friends than help from professionals?

• 1: Yes
• 2: No

Balance of help from family and professionals (BFP) - Question identifier:BFP_Q10

For all the types of help you have indicated, are you satisfied with the balance of help from family and friends, and from professionals?

• 1: Yes
• 2: No

Balance of help from family and professionals (BFP) - Question identifier:BFP_Q20

Would you have preferred to receive more professional help or more help from family and friends?

• 1: More professional help
• 2: More family and friend help

Need for help (NFA) - Question identifier:NFA_Q10

During the past 12 months, did you need help or care for a long-term health condition, physical or mental disability, or problems related to aging?

• 1: Yes
• 2: No

Need for help (NFA) - Question identifier:NFA_Q30

Did you ask for help?

• 1: Yes
• 2: No

Need for help (NFA) - Question identifier:NFA_Q50

If you had needed help, would you have been able to get it?

• 1: Yes
• 2: No

Need for help (NFA) - Question identifier:NFA_Q60

If you had asked for help, do you think that you would have been able to get it?

• 1: Yes
• 2: No

Need for help (NFA) - Question identifier:NFA_Q70

Who would have provided this help to you?

• 11: Immediate family (Include: spouse or partner, children, parents and siblings)
• 12: Extended family
• 13: Friends, neighbours
• 14: Paid workers, government, non-governmental organizations

The primary caregiver (PGN) - Question identifier:PGN_Q10

The next questions ask about the person who, over the past 12 months, has spent the most time and resources helping you because of a long-term health condition, a physical or mental disability, or problems related to aging.

Exclude assistance from professionals.
What is the first name of this person?

Long Answer Length = 30

The primary caregiver (PGN) - Question identifier:PGN_Q20A

How old is [PGN_Q10/this person]?

Min = 0; Max = 999

The primary caregiver (PGN) - Question identifier:PGN_Q25

What [was/is] [PGN_Q10/this person]'s sex?

• 1: Male
• 2: Female

The primary caregiver (PGN) - Question identifier:PGN_Q30

How old was [PGN_Q10/this person] at the time of [his/her/his or her] death?

Min = 0; Max = 999

Relationship between the respondent and the primary caregiver (PGG) - Question identifier:PGG_Q10

What [was/is] the relationship of [PGN_Q10/this person] to you?

• 01: [^FNAME's/Your] spouse or partner
• 02: [^FNAME's/Your] ex-spouse or ex-partner
• 03: [^FNAME's/Your] son
• 04: [^FNAME's/Your] daughter
• 05: [^FNAME's/Your] father
• 06: [^FNAME's/Your] mother
• 07: [^FNAME's/Your] brother
• 08: [^FNAME's/Your] sister
• 09: [^FNAME's/Your] grandson
• 10: [^FNAME's/Your] granddaughter
• 11: [^FNAME's/Your] grandfather
• 12: [^FNAME's/Your] grandmother
• 13: [^FNAME's/Your] son-in-law
• 14: [^FNAME's/Your] daughter-in-law
• 15: [^FNAME's/Your] father-in-law
• 16: [^FNAME's/Your] mother-in-law
• 17: [^FNAME's/Your] brother-in-law
• 18: [^FNAME's/Your] sister-in-law
• 19: [^FNAME's/Your] nephew
• 20: [^FNAME's/Your] niece
• 21: [^FNAME's/Your] uncle
• 22: [^FNAME's/Your] aunt
• 23: [^FNAME's/Your] cousin
• 24: [^FNAME's/Your] close friend
• 25: [^FNAME's/Your] neighbour
• 26: [^FNAME's/Your] co-worker
• 27: Other

Work information of primary caregiver (PGW) - Question identifier:PGW_Q10

At the time you were receiving help, was [PGN_Q10/this person] employed or self-employed?

• 1: Yes
• 2: No

Work information of primary caregiver (PGW) - Question identifier:PGW_Q20

At the time you were receiving help, did [PGN_Q10/this person] work 30 hours or more in an average week?

• 1: Yes
• 2: No
• 9: DK

Year when respondent started to receive help from primary caregiver (PGS) - Question identifier:PGS_Q10

In what year did you start to receive help from [PGN_Q10/this person]?

Min = 9999; Max = 9999

Year when respondent started to receive help from primary caregiver (PGS) - Question identifier:PGS_Q20

How old were you when you started to receive help from [PGN_Q10/this person]?

Min = 0; Max = 999

Still receiving help from primary caregiver (SRE) - Question identifier:SRE_Q10

Are you still receiving help from [PGN_Q10/this person]?

• 1: Yes
• 2: No

Still receiving help from primary caregiver (SRE) - Question identifier:SRE_Q20

What is the main reason why you are no longer receiving help from [PGN_Q10/this person]?

• 1: You no longer need help
• 2: You moved
• 3: [PGN_Q10/This person] moved
• 4: [PGN_Q10/This person] is no longer able to provide care
• 5: [PGN_Q10/This person] has become ill
• 6: [PGN_Q10/This person] has died
• 7: Paid professional now provides care

Month and year when receiving help ended (PGE) - Question identifier:PGE_Q10M

In what month and year did you stop receiving help from [PGN_Q10/this person]?
Month

• 01: January
• 02: February
• 03: March
• 04: April
• 05: May
• 06: June
• 07: July
• 08: August
• 09: September
• 10: October
• 11: November
• 12: December

Month and year when receiving help ended (PGE) - Question identifier:PGE_Q10Y

In what month and year did you stop receiving help from [PGN_Q10/this person]?
Year

• 1: 2016
• 2: 2017
• 3: 2018

Difficulty finding help - If respondent had not received help (DFA) - Question identifier:DFA_Q10

If [PGN_Q10/this person] had not helped you, would you have had difficulty finding help from someone else?

• 1: Yes
• 2: No

Distance between the respondent's and the caregiver's dwellings (PGD) - Question identifier:PGD_Q10

[Does [PGN_Q10/this person] live/During the time you were receiving help, did [PGN_Q10/this person] live]

• 1: in the same household as you
• 2: in the same building as you
• 3: less than 10 minutes by car
• 4: 10 minutes to less than 30 minutes by car
• 5: 30 minutes to less than 1 hour by car
• 6: 1 hour to less than 3 hours by car
• 7: 3 hours or more by car

Usual dwelling of respondent (care receiver) (PGU) - Question identifier:PGU_Q10

[In what type of dwelling do you live?/During the time you were receiving help, in what type of dwelling did you live?]

• 1: In a private household
• 2: In supportive housing (Definition: offers minimal to moderate care, such as homemaking or personal care, so people can live independently.)
• 3: In an institution or care facility (e.g., hospital or nursing home)
• 4: Other

Usual dwelling of respondent (care receiver) (PGU) - Question identifier:PGU_Q20

[Did you move residences, in order to live closer to [PGN_Q10/this person]?/During the time you were receiving help, did you move residences, in order to live closer to [PGN_Q10/this person]?]

• 1: Yes
• 2: No

Frequency of contact with primary caregiver (PGH) - Question identifier:PGH_Q10

During the past 12 months, on average, how often did [PGN_Q10/this person] see you?

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Frequency of contact with primary caregiver (PGH) - Question identifier:PGH_Q20

During the past 12 months, on average, how often did [PGN_Q10/this person] have contact with you by phone, text, email or by video chat?

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Transportation (received) (AGT) - Question identifier:AGT_Q10

During the past 12 months, has [PGN_Q10/this person] helped you with transportation to do shopping, errands, get to medical appointments or social events?

• 1: Yes
• 2: No

Transportation (received) (AGT) - Question identifier:AGT_Q20

[How often has [PGN_Q10/this person] helped you with transportation to do shopping, errands, get to medical appointments or social events?/How often has [he/she/he or she] helped you with these tasks?]

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Transportation (received) (AGT) - Question identifier:AGT_Q30

[On an average day/In an average week/In an average month/On an average occasion], how much time has [PGN_Q10/this person] spent helping you with these tasks?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours to less than 15 hours
• 6: 15 hours to less than 20 hours
• 7: 20 hours or more

Transportation (received) (AGT) - Question identifier:AGT_Q40

Was there anyone else who could have provided this help to you?

• 1: Yes
• 2: No

Meal preparation (received) (AGI) - Question identifier:AGI_Q10

During the past 12 months, has [PGN_Q10/this person] helped you with meal preparation, meal clean-up, house cleaning, laundry or sewing?

• 1: Yes
• 2: No

Meal preparation (received) (AGI) - Question identifier:AGI_Q20

[How often has [PGN_Q10/this person] helped you with meal preparation, meal clean-up, house cleaning, laundry or sewing?/How often has [he/she/he or she] helped you with these tasks?]

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Meal preparation (received) (AGI) - Question identifier:AGI_Q30

[On an average day/In an average week/In an average month/On an average occasion], how much time has [PGN_Q10/this person] spent helping you with these tasks?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours to less than 15 hours
• 6: 15 hours to less than 20 hours
• 7: 20 hours or more

Meal preparation (received) (AGI) - Question identifier:AGI_Q40

Was there anyone else who could have provided this help to you?

• 1: Yes
• 2: No

House maintenance (received) (AGO) - Question identifier:AGO_Q10

During the past 12 months, has [PGN_Q10/this person] helped you with house maintenance or outdoor work?

• 1: Yes
• 2: No

House maintenance (received) (AGO) - Question identifier:AGO_Q20

[How often has [PGN_Q10/this person] helped you with house maintenance or outdoor work?/How often has [he/she/he or she] helped you with these tasks?]

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

House maintenance (received) (AGO) - Question identifier:AGO_Q30

[On an average day/In an average week/In an average month/On an average occasion], how much time has [PGN_Q10/this person] spent helping you with these tasks?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours to less than 15 hours
• 6: 15 hours to less than 20 hours
• 7: 20 hours or more

House maintenance (received) (AGO) - Question identifier:AGO_Q40

Was there anyone else who could have provided this help to you?

• 1: Yes
• 2: No

Personal care (received) (AGP) - Question identifier:AGP_Q10

During the past 12 months, has [PGN_Q10/this person] helped you with personal care?

• 1: Yes
• 2: No

Personal care (received) (AGP) - Question identifier:AGP_Q20

[How often has [PGN_Q10/this person] helped you with personal care?/How often has [he/she/he or she] helped you with these tasks?]

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Personal care (received) (AGP) - Question identifier:AGP_Q30

[On an average day/In an average week/In an average month/On an average occasion], how much time has [PGN_Q10/this person] spent helping you with these tasks?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours to less than 15 hours
• 6: 15 hours to less than 20 hours
• 7: 20 hours or more

Personal care (received) (AGP) - Question identifier:AGP_Q40

Was there anyone else who could have provided this help to you?

• 1: Yes
• 2: No

Medical treatments (received) (AGM) - Question identifier:AGM_Q10

During the past 12 months, has [PGN_Q10/this person] helped you with medical treatments or procedures?

• 1: Yes
• 2: No

Medical treatments (received) (AGM) - Question identifier:AGM_Q20

[How often has [PGN_Q10/this person] helped you with medical treatments or procedures?/How often has [he/she/he or she] helped you with these tasks?]

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Medical treatments (received) (AGM) - Question identifier:AGM_Q30

[On an average day/In an average week/In an average month/On an average occasion], how much time has [PGN_Q10/this person] spent helping you with these tasks?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours to less than 15 hours
• 6: 15 hours to less than 20 hours
• 7: 20 hours or more

Medical treatments (received) (AGM) - Question identifier:AGM_Q40

Was there anyone else who could have provided this help to you?

• 1: Yes
• 2: No

Scheduling (received) (AGS) - Question identifier:AGS_Q10

During the past 12 months, has [PGN_Q10/this person] helped you with scheduling or coordinating care-related tasks, such as making appointments or hiring professional help?

• 1: Yes
• 2: No

Scheduling (received) (AGS) - Question identifier:AGS_Q20

[How often has [PGN_Q10/this person] helped you with scheduling or coordinating care-related tasks?/How often has [he/she/he or she] helped you with these tasks?]

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Scheduling (received) (AGS) - Question identifier:AGS_Q30

[On an average day/In an average week/In an average month/On an average occasion], how much time has [PGN_Q10/this person] spent helping you with these tasks?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours to less than 15 hours
• 6: 15 hours to less than 20 hours
• 7: 20 hours or more

Scheduling (received) (AGS) - Question identifier:AGS_Q40

Was there anyone else who could have provided this help to you?

• 1: Yes
• 2: No

Banking (received) (AGB) - Question identifier:AGB_Q10

During the past 12 months, has [PGN_Q10/this person] helped you with banking, bill paying or managing your finances?

• 1: Yes
• 2: No

Banking (received) (AGB) - Question identifier:AGB_Q20

[How often has [PGN_Q10/this person] helped you with banking, bill paying or managing your finances?/How often has [he/she/he or she] helped you with these tasks?]

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Banking (received) (AGB) - Question identifier:AGB_Q30

[On an average day/In an average week/In an average month/On an average occasion], how much time has [PGN_Q10/this person] spent helping you with these tasks?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours to less than 15 hours
• 6: 15 hours to less than 20 hours
• 7: 20 hours or more

Banking (received) (AGB) - Question identifier:AGB_Q40

Was there anyone else who could have provided this help to you?

• 1: Yes
• 2: No

Visiting (received) (AGV) - Question identifier:AGV_Q10

During the past 12 months, has [PGN_Q10/this person] checked up on you by visiting or calling to make sure you were okay?

• 1: Yes
• 2: No

Visiting (received) (AGV) - Question identifier:AGV_Q40

Was there anyone else who could have provided this assistance to you?

• 1: Yes
• 2: No

Emotional help (received) (AGX) - Question identifier:AGX_Q10

During the past 12 months, has [PGN_Q10/this person] provided you with emotional support?

• 1: Yes
• 2: No

Emotional help (received) (AGX) - Question identifier:AGX_Q40

Was there anyone else who could have provided this help to you?

• 1: Yes
• 2: No

Caregiving by respondent (ICG) - Question identifier:ICG_R110

The next questions ask about help or care you may have given to family, friends or neighbours for a long-term health condition, physical or mental disability or problem relate to aging. This help may include driving them, shopping with or for them, helping with housework, personal care or anything else.

A long-term health condition is one that has lasted or is expected to last 6 months or longer.

Exclude paid help to clients or patients, or help provided on behalf of an organization.

Caregiving by respondent (ICG) - Question identifier:ICG_Q110

During the past 12 months, have you helped or cared for someone who had a long-term health condition or a physical or mental disability?

• 1: Yes
• 2: No

Caregiving by respondent (ICG) - Question identifier:ICG_Q115

During the past 12 months, have you helped or cared for someone who had problems related to aging?

• 1: Yes
• 2: No

Types of help provided by respondent (APR) - Question identifier:APR_R05

The next questions ask about the types of help you have given to family, friends, or neighbours.

Types of help provided by respondent (APR) - Question identifier:APR_Q10

During the past 12 months, have you helped someone with any of the following activities?
a. Transportation to do shopping, errands, get to medical appointments or social events

• 1: Yes
• 2: No

Types of help provided by respondent (APR) - Question identifier:APR_Q20

During the past 12 months, have you helped someone with any of the following activities?
b. Meal preparation, meal clean-up, house cleaning, laundry or sewing

• 1: Yes
• 2: No

Types of help provided by respondent (APR) - Question identifier:APR_Q30

During the past 12 months, have you helped someone with any of the following activities?
c. House maintenance or outdoor work

• 1: Yes
• 2: No

Types of help provided by respondent (APR) - Question identifier:APR_Q40

During the past 12 months, have you helped someone with any of the following activities?
d. Personal care, such as bathing, dressing, toileting, hair care, or care of nails

• 1: Yes
• 2: No

Types of help provided by respondent (APR) - Question identifier:APR_Q50

During the past 12 months, have you helped someone with any of the following activities?
e. Medical treatments, such as changing bandages, taking medications, or other medical procedures

• 1: Yes
• 2: No

Types of help provided by respondent (APR) - Question identifier:APR_Q60

During the past 12 months, have you helped someone with any of the following activities?
f. Scheduling or coordinating care-related tasks, such as making appointments or hiring professional help

• 1: Yes
• 2: No

Types of help provided by respondent (APR) - Question identifier:APR_Q70

During the past 12 months, have you helped someone with any of the following activities?
g. Banking, bill paying or managing their finances

• 1: Yes
• 2: No

Types of help provided by respondent (APR) - Question identifier:APR_Q80

During the past 12 months, have you helped someone with anything else?

• 1: Yes
• 2: No

Types of help provided by respondent (APR) - Question identifier:APR_Q85

Specify this other help

Long Answer Length = 80

Number of hours of help provided by respondent (HAP) - Question identifier:HAP_Q10

In an average week, how many hours of care or help did you provide with these activities?

Min = 0; Max = 999

Number of people helped by respondent (PAR) - Question identifier:PAR_Q10

During the past 12 months, how many family members, friends or neighbours have you helped with any of the previous activities?

Min = 1; Max = 99

Relationship of respondent to people receiving help (RRA) - Question identifier:RRA_R10B

Relationship

Relationship of respondent to people receiving help (RRA) - Question identifier:RRA_R10C

Number of people

Relationship of respondent to people receiving help (RRA) - Question identifier:RRA_Q10

How many of these ^PAR_Q10 people are your
a. immediate family

Min = 0; Max = 99

Relationship of respondent to people receiving help (RRA) - Question identifier:RRA_Q20

How many of these ^PAR_Q10 people are your
b. extended family

Min = 0; Max = 99

Relationship of respondent to people receiving help (RRA) - Question identifier:RRA_Q30

How many of these ^PAR_Q10 people are your
c. friends and neighbours

Min = 0; Max = 99

Relationship of respondent to people receiving help (RRA) - Question identifier:RRA_R40

Total number of people

Demographics of people receiving help from respondent (DPR) - Question identifier:DPR_R10B

Sex

Demographics of people receiving help from respondent (DPR) - Question identifier:DPR_R10C

Number of people

Demographics of people receiving help from respondent (DPR) - Question identifier:DPR_Q10

How many of these ^PAR_Q10 people were
a. women

Min = 0; Max = 99

Demographics of people receiving help from respondent (DPR) - Question identifier:DPR_Q15

How many of these ^PAR_Q10 people were
b. men

Min = 0; Max = 99

Demographics of people receiving help from respondent (DPR) - Question identifier:DPR_R15

Total number of people

Demographics of people receiving help from respondent (DPR) - Question identifier:DPR_R20B

Activity

Demographics of people receiving help from respondent (DPR) - Question identifier:DPR_R20C

Number of people

Demographics of people receiving help from respondent (DPR) - Question identifier:DPR_Q20

At the time you were helping them, how many of these ^PAR_Q10 people were
a. employed

Min = 0; Max = 99

Demographics of people receiving help from respondent (DPR) - Question identifier:DPR_Q30

At the time you were helping them, how many of these ^PAR_Q10 people were
b. retired

Min = 0; Max = 99

Demographics of people receiving help from respondent (DPR) - Question identifier:DPR_Q40

At the time you were helping them, how many of these ^PAR_Q10 people were
c. unemployed

Min = 0; Max = 99

Demographics of people receiving help from respondent (DPR) - Question identifier:DPR_R40

Total number of people

Demographics of people receiving help from respondent (DPR) - Question identifier:DPR_Q50

How many of these ^PAR_Q10 people were students?

Min = 0; Max = 99

Age of people receiving help from respondent (APX) - Question identifier:APX_R10B

Age

Age of people receiving help from respondent (APX) - Question identifier:APX_R10C

Number of people

Age of people receiving help from respondent (APX) - Question identifier:APX_Q10

How many of these ^PAR_Q10 people were
a. below the age of 19

Min = 0; Max = 99

Age of people receiving help from respondent (APX) - Question identifier:APX_Q20

How many of these ^PAR_Q10 people were
b. 19 to 44

Min = 0; Max = 99

Age of people receiving help from respondent (APX) - Question identifier:APX_Q30

How many of these ^PAR_Q10 people were
c. 45 to 64

Min = 0; Max = 99

Age of people receiving help from respondent (APX) - Question identifier:APX_Q40

How many of these ^PAR_Q10 people were
d. 65 to 79

Min = 0; Max = 99

Age of people receiving help from respondent (APX) - Question identifier:APX_Q50

How many of these ^PAR_Q10 people were
e. 80 years of age or older

Min = 0; Max = 99

Age of people receiving help from respondent (APX) - Question identifier:APX_R60

Total number of people

Respondent providing emotional support (RPE) - Question identifier:RPE_Q10

During the past 12 months, have you provided emotional support?

• 1: Yes
• 2: No

The primary care receiver (PRN) - Question identifier:PRN_R10A

Now some questions about the person you have helped during the past 12 months.

Include care or help given to family, friends or neighbours.
Exclude paid help to clients or patients, or help provided on behalf of an organization.

The primary care receiver (PRN) - Question identifier:PRN_R10B

Now some questions about the person to whom, over the past 12 months, you have dedicated the most time and resources because of a long-term health condition, a physical or mental disability, or problems related to aging.

Include care or help given to family, friends or neighbours.
Exclude paid help to clients or patients, or help provided on behalf of an organization.

The primary care receiver (PRN) - Question identifier:PRN_Q10

What is the first name of this person?

Long Answer Length = 30

The primary care receiver (PRN) - Question identifier:PRN_R20

How old is [PRN_Q10/this person]?

The primary care receiver (PRN) - Question identifier:PRN_Q25

What [was/is] [PRN_Q10/this person]'s sex?

• 1: Male
• 2: Female

The primary care receiver (PRN) - Question identifier:PRN_Q30

How old was [PRN_Q10/this person] at the time of [his/her/his or her] death?

Min = 0; Max = 999

The primary care receiver (PRN) - Question identifier:PRN_Q40

Where did [PRN_Q10/this person] die?

• 1: In a hospital
• 2: In a long-term care facility
• 3: In their home
• 4: In your home
• 5: In some other place

Relationship between respondent and care receiver (PRG) - Question identifier:PRG_Q10

What [was/is] the relationship of [PRN_Q10/this person] to you?

• 01: [^FNAME's/Your] spouse or partner
• 02: [^FNAME's/Your] ex-spouse or ex-partner
• 03: [^FNAME's/Your] son
• 04: [^FNAME's/Your] daughter
• 05: [^FNAME's/Your] father
• 06: [^FNAME's/Your] mother
• 07: [^FNAME's/Your] brother
• 08: [^FNAME's/Your] sister
• 09: [^FNAME's/Your] grandson
• 10: [^FNAME's/Your] granddaughter
• 11: [^FNAME's/Your] grandfather
• 12: [^FNAME's/Your] grandmother
• 13: [^FNAME's/Your] son-in-law
• 14: [^FNAME's/Your] daughter-in-law
• 15: [^FNAME's/Your] father-in-law
• 16: [^FNAME's/Your] mother-in-law
• 17: [^FNAME's/Your] brother-in-law
• 18: [^FNAME's/Your] sister-in-law
• 19: [^FNAME's/Your] nephew
• 20: [^FNAME's/Your] niece
• 21: [^FNAME's/Your] uncle
• 22: [^FNAME's/Your] aunt
• 23: [^FNAME's/Your] cousin
• 24: [^FNAME's/Your] close friend
• 25: [^FNAME's/Your] neighbour
• 26: [^FNAME's/Your] co-worker
• 27: Other

Health problems which requires help (PRP) - Question identifier:PRP_Q10

What [was/is] the main health condition or problem for which [PRN_Q10/this person] received help?

• 01: Arthritis (e.g., rheumatoid arthritis, osteoarthritis, lupus or gout)
• 02: Osteoporosis
• 03: Cardiovascular disease (e.g., angina, heart attack, stroke and hypertension)
• 04: Kidney disease
• 05: Asthma
• 06: Chronic bronchitis, emphysema or chronic obstructive pulmonary disease (COPD)
• 07: Diabetes
• 08: Migraine
• 09: Back problems
• 10: Cancer
• 11: Mental illness (e.g., depression, bipolar disorder, mania or schizophrenia)
• 12: Alzheimer's disease or dementia
• 13: All other neurological diseases (e.g., Parkinson's disease, multiple sclerosis, spina bifida, cerebral palsy)
• 14: Urinary or bowel incontinence
• 15: Digestive disease (e.g., celiac disease, irritable bowel syndrome, stomach ulcers, Crohn's disease)
• 16: Fibromyalgia, chronic fatigue syndrome or multiple chemical sensitivities
• 17: Developmental disability or disorder
• 18: Injury resulting from an accident
• 19: Aging or frailty
• 20: Other

Health problems which requires help (PRP) - Question identifier:PRP_Q15

Would you say that this condition is mild, moderate or severe?

• 1: Mild
• 2: Moderate
• 3: Severe

Work information of primary care receiver (PRW) - Question identifier:PRW_Q10

At the time you were providing help, was [PRN_Q10/this person] employed or self-employed?

• 1: Yes
• 2: No

Work information of primary care receiver (PRW) - Question identifier:PRW_Q20

At the time you were providing help, did [PRN_Q10/this person] work 30 hours or more in an average week?

• 1: Yes
• 2: No
• 9: DK

Year when respondent started to provide help (PRS) - Question identifier:PRS_Q10

In what year did you start to help [PRN_Q10/this person]?

Min = 9999; Max = 9999

Year when respondent started to provide help (PRS) - Question identifier:PRS_Q20

How old were you when you started to help [PRN_Q10/this person]?

Min = 0; Max = 999

Still providing help to primary care receiver (SPR) - Question identifier:SPR_Q10

Are you still helping [PRN_Q10/this person]?

• 1: Yes
• 2: No

Still providing help to primary care receiver (SPR) - Question identifier:SPR_Q20

What is the main reason why you are no longer helping [PRN_Q10/this person]?

• 01: [PRN_Q10/This person] no longer needs help
• 02: [PRN_Q10/This person] moved
• 03: You moved
• 04: You are no longer able to provide care
• 05: You have become ill
• 06: Another family, friend, or neighbour now provides help
• 07: Paid professional now provides care
• 08: Other

Month and year when providing help ended (PRE) - Question identifier:PRE_Q10M

In what month and year did you stop helping [PRN_Q10/this person]?
Month

• 01: January
• 02: February
• 03: March
• 04: April
• 05: May
• 06: June
• 07: July
• 08: August
• 09: September
• 10: October
• 11: November
• 12: December

Month and year when providing help ended (PRE) - Question identifier:PRE_Q10Y

In what month and year did you stop helping [PRN_Q10/this person]?
Year

• 1: 2016
• 2: 2017
• 3: 2018

Distance between the respondent's and the care receiver's dwellings (PRD) - Question identifier:PRD_Q10

[How close does [PRN_Q10/this person] live to you?/During the time you were providing help, how close did [PRN_Q10/this person] live to you?]

• 1: In the same household as you
• 2: In the same building as you
• 3: Less than 10 minutes by car
• 4: 10 minutes to less than 30 minutes by car
• 5: 30 minutes to less than 1 hour by car
• 6: 1 hour to less than 3 hours by car
• 7: 3 hours or more by car

Usual dwelling of primary care receiver (PRU) - Question identifier:PRU_Q10

[[PRN_Q10/This person] lives in what type of dwelling?/During the time you were providing help, [PRN_Q10/this person] lived in what type of dwelling?]

• 1: In a private household
• 2: In supportive housing (Definition: offers minimal to moderate care, such as homemaking or personal care, so people can live independently.)
• 3: In an institution or care facility (e.g., hospital or nursing home)
• 4: Other

Usual dwelling of primary care receiver (PRU) - Question identifier:PRU_Q20

[Did you move residences, in order to live closer to [PRN_Q10/this person]?/During the time you were providing help, did you move residences, in order to live closer to [PRN_Q10/this person]?]

• 1: Yes
• 2: No

Frequency of contact with primary care receiver (PRH) - Question identifier:PRH_Q10

During the past 12 months, on average, how often did you see [PRN_Q10/this person]?

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Frequency of contact with primary care receiver (PRH) - Question identifier:PRH_Q20

During the past 12 months, on average, how often did you have contact with [PRN_Q10/this person] by phone, text, email or by video chat?

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Transportation (provided) (ART) - Question identifier:ART_Q10

During the past 12 months, have you helped [PRN_Q10/this person] with transportation to do shopping, errands, get to medical appointments or social events?

• 1: Yes
• 2: No

Transportation (provided) (ART) - Question identifier:ART_Q20

[How often have you helped [PRN_Q10/this person] with transportation to do shopping, errands, get to medical appointments or social events?/How often have you helped [him/her/him or her] with these tasks?]

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Transportation (provided) (ART) - Question identifier:ART_Q30

[On an average day/In an average week/In an average month/On an average occasion], how much time have you spent helping [him/her/him or her] with these tasks?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours to less than 15 hours
• 6: 15 hours to less than 20 hours
• 7: 20 hours or more

Transportation (provided) (ART) - Question identifier:ART_Q40

Was there anyone else, other than a paid caregiver, who could have provided this help to [him/her/him or her]?

• 1: Yes
• 2: No

Meal preparation (provided) (ARI) - Question identifier:ARI_Q10

During the past 12 months, have you helped [PRN_Q10/this person] with meal preparation, meal clean-up, house cleaning, laundry or sewing?

• 1: Yes
• 2: No

Meal preparation (provided) (ARI) - Question identifier:ARI_Q20

[How often have you helped [PRN_Q10/this person] with meal preparation, meal clean-up, house cleaning, laundry or sewing?/How often have you helped [him/her/him or her] with these tasks?]

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Meal preparation (provided) (ARI) - Question identifier:ARI_Q30

[On an average day/In an average week/In an average month/On an average occasion], how much time have you spent helping [him/her/him or her] with these tasks?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours to less than 15 hours
• 6: 15 hours to less than 20 hours
• 7: 20 hours or more

Meal preparation (provided) (ARI) - Question identifier:ARI_Q40

Was there anyone else, other than a paid caregiver, who could have provided this help to [him/her/him or her]?

• 1: Yes
• 2: No

House maintenance (provided) (ARO) - Question identifier:ARO_Q10

During the past 12 months, have you helped [PRN_Q10/this person] with house maintenance or outdoor work?

• 1: Yes
• 2: No

House maintenance (provided) (ARO) - Question identifier:ARO_Q20

[How often have you helped [PRN_Q10/this person] with house maintenance or outdoor work?/How often have you helped [him/her/him or her] with these tasks?]

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

House maintenance (provided) (ARO) - Question identifier:ARO_Q30

[On an average day/In an average week/In an average month/On an average occasion], how much time have you spent helping [him/her/him or her] with these tasks?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours to less than 15 hours
• 6: 15 hours to less than 20 hours
• 7: 20 hours or more

House maintenance (provided) (ARO) - Question identifier:ARO_Q40

Was there anyone else, other than a paid caregiver, who could have provided this help to [him/her/him or her]?

• 1: Yes
• 2: No

Personal care (provided) (ARP) - Question identifier:ARP_Q10

During the past 12 months, have you helped [PRN_Q10/this person] with personal care?

• 1: Yes
• 2: No

Personal care (provided) (ARP) - Question identifier:ARP_Q20

[How often have you helped [PRN_Q10/this person] with personal care?/How often have you helped [him/her/him or her] with these tasks?]

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Personal care (provided) (ARP) - Question identifier:ARP_Q30

[On an average day/In an average week/In an average month/On an average occasion], how much time have you spent helping [him/her/him or her] with these tasks?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours to less than 15 hours
• 6: 15 hours to less than 20 hours
• 7: 20 hours or more

Personal care (provided) (ARP) - Question identifier:ARP_Q40

Was there anyone else, other than a paid caregiver, who could have provided this help to [him/her/him or her]?

• 1: Yes
• 2: No

Medical treatments (provided) (ARM) - Question identifier:ARM_Q10

During the past 12 months, have you helped [PRN_Q10/this person] with medical treatments or procedures?

• 1: Yes
• 2: No

Medical treatments (provided) (ARM) - Question identifier:ARM_Q20

[How often have you helped [PRN_Q10/this person] with medical treatments or procedures?/How often have you helped [him/her/him or her] with these tasks?]

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Medical treatments (provided) (ARM) - Question identifier:ARM_Q30

[On an average day/In an average week/In an average month/On an average occasion], how much time have you spent helping [him/her/him or her] with these tasks?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours to less than 15 hours
• 6: 15 hours to less than 20 hours
• 7: 20 hours or more

Medical treatments (provided) (ARM) - Question identifier:ARM_Q40

Was there anyone else, other than a paid caregiver, who could have provided this help to [him/her/him or her]?

• 1: Yes
• 2: No

Scheduling (provided) (ARS) - Question identifier:ARS_Q10

During the past 12 months, have you helped [PRN_Q10/this person] with scheduling or coordinating care-related tasks, such as making appointments or hiring professional help?

• 1: Yes
• 2: No

Scheduling (provided) (ARS) - Question identifier:ARS_Q20

[How often have you helped [PRN_Q10/this person] with scheduling or coordinating care-related tasks, such as making appointments or hiring professional help?/How often have you helped [him/her/him or her] with these tasks?]

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Scheduling (provided) (ARS) - Question identifier:ARS_Q30

[On an average day/In an average week/In an average month/On an average occasion], how much time have you spent helping [him/her/him or her] with these tasks?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours to less than 15 hours
• 6: 15 hours to less than 20 hours
• 7: 20 hours or more

Scheduling (provided) (ARS) - Question identifier:ARS_Q40

Was there anyone else, other than a paid caregiver, who could have provided this help to [him/her/him or her]?

• 1: Yes
• 2: No

Banking (provided) (ARB) - Question identifier:ARB_Q10

During the past 12 months, have you helped [PRN_Q10/this person] with banking, bill paying or managing finances?

• 1: Yes
• 2: No

Banking (provided) (ARB) - Question identifier:ARB_Q20

[How often have you helped [PRN_Q10/this person] with banking, bill paying or managing finances?/How often have you helped [him/her/him or her] with these tasks?]

• 1: Daily
• 2: At least once a week
• 3: At least once a month
• 4: Less than once a month

Banking (provided) (ARB) - Question identifier:ARB_Q30

[On an average day/In an average week/In an average month/On an average occasion], how much time have you spent helping with these tasks?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours to less than 15 hours
• 6: 15 hours to less than 20 hours
• 7: 20 hours or more

Banking (provided) (ARB) - Question identifier:ARB_Q40

Was there anyone else, other than a paid caregiver, who could have provided this help to [him/her/him or her]?

• 1: Yes
• 2: No

Visiting (provided) (ARV) - Question identifier:ARV_Q10

During the past 12 months, have you checked up on [PRN_Q10/this person] by visiting or calling to make sure [he/she/he or she] was okay?

• 1: Yes
• 2: No

Visiting (provided) (ARV) - Question identifier:ARV_Q40

Was there anyone else, other than a paid caregiver, who could have provided this help to [him/her/him or her]?

• 1: Yes
• 2: No

Emotional help (provided) (ARX) - Question identifier:ARX_Q10

During the past 12 months, have you provided [PRN_Q10/this person] with emotional support?

• 1: Yes
• 2: No

Emotional help (provided) (ARX) - Question identifier:ARX_Q40

Was there anyone else, other than a paid caregiver, who could have provided this help to [him/her/him or her]?

• 1: Yes
• 2: No

Care receiver considers respondent their primary caregiver (CCP) - Question identifier:CCP_Q10

Would you say that [PRN_Q10/this person] consider[ed/s] you to be [his/her/his or her] primary caregiver?

• 1: Yes
• 2: No
• 9: DK

Care receiver considers respondent their primary caregiver (CCP) - Question identifier:CCP_Q20

Do you believe you [were/are] the main contact or coordinator for [PRN_Q10/this person]'s care arrangements?

• 1: Yes
• 2: No

Number of other people who help primary care receiver (CGN) - Question identifier:CGN_R120A

Now we would like to know about people other than you who provided help to [PRN_Q10/this person].

Number of other people who help primary care receiver (CGN) - Question identifier:CGN_Q120A

How many other friends and family members have helped [PRN_Q10/this person] during the past 12 months?

Min = 0; Max = 99

Relationship of other caregivers to primary care receiver (RNA) - Question identifier:RNA_R10B

Relationship

Relationship of other caregivers to primary care receiver (RNA) - Question identifier:RNA_R10C

Number of people

Relationship of other caregivers to primary care receiver (RNA) - Question identifier:RNA_Q10

How many of these ^CGN_Q120A people are [PRN_Q10/this person]'s
a. immediate family

Min = 0; Max = 99

Relationship of other caregivers to primary care receiver (RNA) - Question identifier:RNA_Q20

How many of these ^CGN_Q120A people are [PRN_Q10/this person]'s
b. extended family

Min = 0; Max = 99

Relationship of other caregivers to primary care receiver (RNA) - Question identifier:RNA_Q30

How many of these ^CGN_Q120A people are [PRN_Q10/this person]'s
c. friends and neighbours

Min = 0; Max = 99

Relationship of other caregivers to primary care receiver (RNA) - Question identifier:RNA_Q40

How many of these ^CGN_Q120A people are [PRN_Q10/this person]'s
d. relationship unknown

Min = 0; Max = 99

Relationship of other caregivers to primary care receiver (RNA) - Question identifier:RNA_R40

Total number of people

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_R10B

Sex

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_R10C

Number of people

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_Q10

How many of these ^CGN_Q120A people are
a. women

Min = 0; Max = 99

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_Q15

How many of these ^CGN_Q120A people are
b. men

Min = 0; Max = 99

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_Q18

How many of these ^CGN_Q120A people are
c. don't know

Min = 0; Max = 99

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_R18

Total number of people

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_Q20A

At the time they were providing help to [PRN_Q10/this person], how many of these ^CGN_Q120A people were employed?

Min = 0; Max = 99

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_R31B

Age

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_R31C

Number of people

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_Q31

At the time they were providing help to [PRN_Q10/this person], how many of these ^CGN_Q120A people were
a. below the age of 19

Min = 0; Max = 99

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_Q32

At the time they were providing help to [PRN_Q10/this person], how many of these ^CGN_Q120A people were
b. 19 to 44

Min = 0; Max = 99

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_Q33

At the time they were providing help to [PRN_Q10/this person], how many of these ^CGN_Q120A people were
c. 45 to 64

Min = 0; Max = 00

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_Q34

At the time they were providing help to [PRN_Q10/this person], how many of these ^CGN_Q120A people were
d. 65 to 79

Min = 0; Max = 99

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_Q35

At the time they were providing help to [PRN_Q10/this person], how many of these ^CGN_Q120A people were
e. 80 years of age or older

Min = 0; Max = 99

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_Q40

At the time they were providing help to [PRN_Q10/this person], how many of these ^CGN_Q120A people were
f. age unknown

Min = 0; Max = 99

Demographics of other caregivers helping the primary care receiver (DNA) - Question identifier:DNA_R40

Total number of people

Relationship of the other person providing help to primary care receiver (ROA) - Question identifier:ROA_Q05

What is the sex of the person who provided help to [PRN_Q10/this person]?

• 1: Male
• 2: Female

Relationship of the other person providing help to primary care receiver (ROA) - Question identifier:ROA_Q10

What is the relationship between [PRN_Q10/this person] and this other person who provided help?

• 01: [PRN_Q10/This person]'s spouse or partner
• 02: [PRN_Q10/This person]'s son
• 03: [PRN_Q10/This person]'s daughter
• 04: [PRN_Q10/This person]'s father
• 05: [PRN_Q10/This person]'s mother
• 06: [PRN_Q10/This person]'s brother
• 07: [PRN_Q10/This person]'s sister
• 08: [PRN_Q10/This person]'s grandson
• 09: [PRN_Q10/This person]'s granddaughter
• 10: [PRN_Q10/This person]'s son-in-law
• 11: [PRN_Q10/This person]'s daughter-in-law
• 12: [PRN_Q10/This person]'s nephew
• 13: [PRN_Q10/This person]'s niece
• 14: [PRN_Q10/This person]'s close friend
• 15: [PRN_Q10/This person]'s neighbour
• 16: Other

Demographics of other person providing help to primary care receiver (DOA) - Question identifier:DOA_Q20

While providing help to [PRN_Q10/this person], was this person employed?

• 1: Yes
• 2: No
• 9: DK

Demographics of other person providing help to primary care receiver (DOA) - Question identifier:DOA_Q30A

How old is this person?
Age

Min = 0; Max = 999

Help provided to primary care receiver of respondent from paid workers, government agencies or voluntary organizations (HPO) - Question identifier:HPO_Q10

During the past 12 months, has [PRN_Q10/this person] received help from professionals, that is paid workers or organizations?

• 1: Yes
• 2: No
• 9: DK

Hours of received help (for primary care receiver of respondent) from paid workers or government or non-government organizations (HRA) - Question identifier:HRA_Q10

In an average week, how many hours of help has [he/she/he or she] received from professionals?

• 1: Less than 1 hour
• 2: 1 hour to less than 3 hours
• 3: 3 hours to less than 5 hours
• 4: 5 hours to less than 10 hours
• 5: 10 hours or more
• 9: DK

Accommodate caregiving duties (ACD) - Question identifier:ACD_R10A

The next questions are about support you may have received from others to help you with your caregiving responsibilities.

Accommodate caregiving duties (ACD) - Question identifier:ACD_Q10

To accommodate your caregiving duties, has any of the following support been provided to you?
a. [His/Her/Your] spouse or partner modified their life and work arrangements

• 1: Yes
• 2: No

Accommodate caregiving duties (ACD) - Question identifier:ACD_Q20

To accommodate your caregiving duties, has any of the following support been provided to you?
b. [His/Her/Your] children provided you with help

• 1: Yes
• 2: No

Accommodate caregiving duties (ACD) - Question identifier:ACD_Q30

To accommodate your caregiving duties, has any of the following support been provided to you?
c. [His/Her/Your] extended family members provided you with help

• 1: Yes
• 2: No

Accommodate caregiving duties (ACD) - Question identifier:ACD_Q40

To accommodate your caregiving duties, has any of the following support been provided to you?
d. [His/Her/Your] close friends or neighbours provided you with help

• 1: Yes
• 2: No

Accommodate caregiving duties (ACD) - Question identifier:ACD_Q50

To accommodate your caregiving duties, has any of the following support been provided to you?
e. [His/Her/Your] community, spiritual community, or cultural or ethnic groups provided you with help

• 1: Yes
• 2: No

Accommodate caregiving duties (ACD) - Question identifier:ACD_Q60

To accommodate your caregiving duties, has any of the following support been provided to you?
f. You had occasional relief or respite care

• 1: Yes
• 2: No

Accommodate caregiving duties (ACD) - Question identifier:ACD_Q70

To accommodate your caregiving duties, has any of the following support been provided to you?
g. [His/Her/Your] family or friends provided you with financial support

• 1: Yes
• 2: No

Accommodate caregiving duties (ACD) - Question identifier:ACD_Q80

To help you with caregiving, have you received money from government programs?

• 1: Yes
• 2: No

Accommodate caregiving duties (ACD) - Question identifier:ACD_Q80A

Please specify which programs

Long Answer Length = 250

Accommodate caregiving duties (ACD) - Question identifier:ACD_Q90

Have you received any Federal tax credits for which caregivers may be eligible?

• 1: Yes
• 2: No

Other type of support to accommodate caregiving duties (OAC) - Question identifier:OAC_Q20

Is there any other type of support that you would like to have to help with your caregiving duties?

• 1: Yes
• 2: No

Other type of support to accommodate caregiving duties (OAC) - Question identifier:OAC_Q30

What kinds of support would you like to have?

• 01: Home care or support
• 02: Financial support, government assistance or tax credit
• 03: Information or advice
• 04: Emotional support or counselling
• 05: Help from medical professionals
• 06: Occasional relief or respite care
• 07: Volunteer services or community services
• 08: Other

Caregiving history (CGH) - Question identifier:CGH_Q100

Have you ever provided care to someone with a long-term health condition, a physical or mental disability or problems related to aging?

• 1: Yes
• 2: No

Caregiving history (CGH) - Question identifier:CGH_Q110

Excluding the people you have helped during the past 12 months, have you ever provided care to anyone else with a long-term health condition, a physical or mental disability or problems related to aging?

• 1: Yes
• 2: No

Caregiving history (CGH) - Question identifier:CGH_Q120

How many people have you provided care to?

• 01: 1
• 02: 2
• 03: 3
• 04: 4
• 05: 5
• 06: 6
• 07: 7
• 08: 8
• 09: 9
• 10: 10 or more

Caregiving history - Names (CGH2) - Question identifier:CGH2_Q130

What is the first name of [the person/the ^CGH_Q120 people/5 of these people] that you provided care to?

Long Answer Length = 80

Caregiving incident detail (CGI) - Question identifier:CGI_R100

We have a few questions about these people.

Caregiving incident detail (CGI) - Question identifier:CGI_Q110

In what year did you begin to provide care to [CGH2_Q130/this person/the first person/the second person/the third person/the fourth person/the fifth person]?

Min = 0; Max = 9999

Caregiving incident detail (CGI) - Question identifier:CGI_Q111

At what age did you begin to provide care to [CGH2_Q130/this person/the first person/the second person/the third person/the fourth person/the fifth person]?

Min = 0; Max = 999

Caregiving incident detail (CGI) - Question identifier:CGI_Q120

In what year did you stop providing care to [CGH2_Q130/this person/the first person/the second person/the third person/the fourth person/the fifth person]?

Min = 0; Max = 9999

Caregiving incident detail (CGI) - Question identifier:CGI_Q121

At what age did you stop providing help to [CGH2_Q130/this person/the first person/the second person/the third person/the fourth person/the fifth person]?

Min = 0; Max = 999

Caregiving incident detail (CGI) - Question identifier:CGI_Q125

What was [CGH2_Q130/this person/the first person/the second person/the third person/the fourth person/the fifth person]'s sex?

• 1: Male
• 2: Female

Caregiving incident detail (CGI) - Question identifier:CGI_Q130

What was the relationship of [CGH2_Q130/this person/the first person/the second person/the third person/the fourth person/the fifth person] to you?

• 01: [^FNAME's/Your] spouse or partner
• 02: [^FNAME's/Your] ex-spouse or ex-partner
• 03: [^FNAME's/Your] son
• 04: [^FNAME's/Your] daughter
• 05: [^FNAME's/Your] father
• 06: [^FNAME's/Your] mother
• 07: [^FNAME's/Your] brother
• 08: [^FNAME's/Your] sister
• 09: [^FNAME's/Your] grandson
• 10: [^FNAME's/Your] granddaughter
• 11: [^FNAME's/Your] grandfather
• 12: [^FNAME's/Your] grandmother
• 13: [^FNAME's/Your] son-in-law
• 14: [^FNAME's/Your] daughter-in-law
• 15: [^FNAME's/Your] father-in-law
• 16: [^FNAME's/Your] mother-in-law
• 17: [^FNAME's/Your] brother-in-law
• 18: [^FNAME's/Your] sister-in-law
• 19: [^FNAME's/Your] nephew
• 20: [^FNAME's/Your] niece
• 21: [^FNAME's/Your] uncle
• 22: [^FNAME's/Your] aunt
• 23: [^FNAME's/Your] cousin
• 24: [^FNAME's/Your] close friend
• 25: [^FNAME's/Your] neighbour
• 26: [^FNAME's/Your] co-worker
• 27: Other

Caregiving incident detail (CGI) - Question identifier:CGI_Q140

Would you say that, other than professional care, [CGH2_Q130/this person/the first person/the second person/the third person/the fourth person/the fifth person] considered you to be [his/her/his or her] primary caregiver?

• 1: Yes
• 2: No

Caregiving incident detail (CGI) - Question identifier:CGI_Q160

Did [CGH2_Q130/this person/the first person/the second person/the third person/the fourth person/the fifth person] also receive professional care?

• 1: Yes
• 2: No

End-of-life care (CGE) - Question identifier:CGE_R100

Now, some questions about any end-of-life care you may have provided to family, friends or neighbours.

Exclude paid assistance to clients or patients and volunteering on behalf of an organization.

End-of-life care (CGE) - Question identifier:CGE_Q100

Have you ever provided end-of-life care?

• 1: Yes
• 2: No

End-of-life care (CGE) - Question identifier:CGE_Q150

Have you provided end-of-life care during the past 12 months?

• 1: Yes
• 2: No

Currently providing end-of-life care (CPE) - Question identifier:CPE_Q10

Are you currently providing end-of-life care?

• 1: Yes
• 2: No

Currently providing end-of-life care (CPE) - Question identifier:CPE_Q20

[Do/Did/Do/Did] you provide this care in your home?

• 1: Yes
• 2: No

Preferred to provide end-of-life care at home (PEH) - Question identifier:PEH_Q10

Would you [prefer/have preferred] to provide end-of-life care in your home?

• 1: Yes
• 2: No

Conditions needed to provide end-of-life care at home (CEH) - Question identifier:CEH_Q10

What conditions would [enable/have enabled] you to provide end-of-life care to this person in your home?
a. Physical modifications to your home

• 1: Yes
• 2: No

Conditions needed to provide end-of-life care at home (CEH) - Question identifier:CEH_Q20

What conditions would [enable/have enabled] you to provide end-of-life care to this person in your home?
b. Financial assistance to cover additional costs

• 1: Yes
• 2: No

Conditions needed to provide end-of-life care at home (CEH) - Question identifier:CEH_Q30

What conditions would [enable/have enabled] you to provide end-of-life care to this person in your home?
c. Time off work without loss of pay

• 1: Yes
• 2: No

Conditions needed to provide end-of-life care at home (CEH) - Question identifier:CEH_Q40

What conditions would [enable/have enabled] you to provide end-of-life care to this person in your home?
d. Better physical health or stamina

• 1: Yes
• 2: No

Conditions needed to provide end-of-life care at home (CEH) - Question identifier:CEH_Q50

What conditions would [enable/have enabled] you to provide end-of-life care to this person in your home?
e. Health-related training

• 1: Yes
• 2: No

Conditions needed to provide end-of-life care at home (CEH) - Question identifier:CEH_Q60

What conditions would [enable/have enabled] you to provide end-of-life care to this person in your home?
f. Home care support

• 1: Yes
• 2: No

Conditions needed to provide end-of-life care at home (CEH) - Question identifier:CEH_Q70

What conditions would [enable/have enabled] you to provide end-of-life care to this person in your home?
g. Some other condition

• 1: Yes
• 2: No

Conditions needed to provide end-of-life care at home (CEH) - Question identifier:CEH_Q75

What other condition would [enable/have enabled] you to provide end-of-life care to this person in your home?

Long Answer Length = 80

Compassionate care leave (CCL) - Question identifier:CCL_Q10

Have you ever taken "Compassionate Care Leave" to care for a terminally ill family member or friend?

• 1: Yes
• 2: No

Compassionate care leave (CCL) - Question identifier:CCL_Q20

Did you take this leave during the past 12 months?

• 1: Yes
• 2: No

Family life (ICL) - Question identifier:ICL_R100

Now some questions about how all your caregiving responsibilities during the past 12 months may have affected your life.

Some questions may not apply to you but we have to ask the same questions of everyone.

Family life (ICL) - Question identifier:ICL_Q100

In general, how have you been coping with your caregiving responsibilities?

• 1: Very well
• 2: Generally well
• 3: Not very well
• 4: Not well at all

Family life (ICL) - Question identifier:ICL_Q110

In the past 12 months, have your caregiving responsibilities caused you to
a. spend less time with your spouse or partner

• 1: Yes
• 2: No

Family life (ICL) - Question identifier:ICL_Q120

In the past 12 months, have your caregiving responsibilities caused you to
b. spend less time with your children

• 1: Yes
• 2: No

Family life (ICL) - Question identifier:ICL_Q130

In the past 12 months, have your caregiving responsibilities caused you to
c. spend less time [with other/with] family members

• 1: Yes
• 2: No

Family life (ICL) - Question identifier:ICL_Q135

In the past 12 months, have your caregiving responsibilities caused you to
d. spend less time with friends

• 1: Yes
• 2: No

Family life (ICL) - Question identifier:ICL_Q140

In the past 12 months, have your caregiving responsibilities caused you to
e. spend less time on social activities or hobbies

• 1: Yes
• 2: No

Family life (ICL) - Question identifier:ICL_Q150

In the past 12 months, have your caregiving responsibilities caused you to
f. spend less time on relaxing or taking care of yourself

• 1: Yes
• 2: No

Family life (ICL) - Question identifier:ICL_Q152

In the past 12 months, have your caregiving responsibilities caused you to
g. spend less time volunteering for an organization

• 1: Yes
• 2: No

Family life (ICL) - Question identifier:ICL_Q154

In the past 12 months, have your caregiving responsibilities caused you to
h. spend less time participating in political, social or cultural groups

• 1: Yes
• 2: No

Family life (ICL) - Question identifier:ICL_Q160

In the past 12 months, have your caregiving responsibilities caused you to
i. make holiday plans and change or cancel them

• 1: Yes
• 2: No

Family life (ICL) - Question identifier:ICL_Q170

In the past 12 months, have your caregiving responsibilities caused you to
j. not make holiday plans at all

• 1: Yes
• 2: No

Family life (ICL) - Question identifier:ICL_Q180

In the past 12 months, have your caregiving responsibilities caused you to
k. move residences

• 1: Yes
• 2: No

Family life (ICL) - Question identifier:ICL_Q210

In the past 12 months, have your caregiving responsibilities caused strain in your relationship with family members or friends?

• 1: Yes
• 2: No

Healthy behaviour (ICB) - Question identifier:ICB_Q10

In the past 12 months, have your caregiving responsibilities affected the amount of exercise that you usually get?

• 1: Yes
• 2: No
• 3: Don't exercise

Healthy behaviour (ICB) - Question identifier:ICB_Q15

Did the amount of exercise increase or decrease?

• 1: Increased
• 2: Decreased

Healthy behaviour (ICB) - Question identifier:ICB_Q20

In the past 12 months, have your eating habits changed as a result of your caregiving responsibilities?

• 1: Yes
• 2: No

Healthy behaviour (ICB) - Question identifier:ICB_Q25

Have your eating habits become more healthy or less healthy?

• 1: More healthy
• 2: Less healthy

Healthy behaviour (ICB) - Question identifier:ICB_Q30

During the past 12 months, have your caregiving responsibilities affected the amount of alcohol you consume?

• 1: Yes
• 2: No
• 3: Don't drink alcohol

Healthy behaviour (ICB) - Question identifier:ICB_Q35

Did you

• 1: increase your drinking
• 2: decrease your drinking
• 3: stop drinking
• 4: start drinking

Healthy behaviour (ICB) - Question identifier:ICB_Q40

In the past 12 months, have your smoking habits changed because of your caregiving responsibilities?

• 1: Yes
• 2: No
• 3: Don't smoke

Healthy behaviour (ICB) - Question identifier:ICB_Q45

Did you

• 1: increase the number of cigarettes you smoke
• 2: decrease the number of cigarettes you smoke
• 3: stop smoking
• 4: start smoking

Physical health (ICP) - Question identifier:ICP_Q10

During the past 12 months, has your overall health suffered because of your caregiving responsibilities?

• 1: Yes
• 2: No

Physical health (ICP) - Question identifier:ICP_Q15

During the past 12 months, how physically strenuous were your caregiving responsibilities?

• 1: Very strenuous
• 2: Strenuous
• 3: Somewhat strenuous
• 4: Not at all strenuous

Physical health (ICP) - Question identifier:ICP_Q20

During the past 12 months, how often did you see a medical professional for your own health problems which resulted from your caregiving responsibilities?

• 1: Never
• 2: Once
• 3: 2 to 3 times
• 4: 4 or more times

Physical health (ICP) - Question identifier:ICP_Q25

Have your caregiving responsibilities prevented you from seeing a medical professional for health problems of your own?

• 1: Yes
• 2: No

Physical health (ICP) - Question identifier:ICP_Q30

During the past 12 months, have you suffered any injuries while performing your caregiving responsibilities?

• 1: Yes
• 2: No

Physical health (ICP) - Question identifier:ICP_Q35

Did you suffer one injury or more than one injury?

• 1: One injury
• 2: More than one injury

Physical health (ICP) - Question identifier:ICP_Q40

Did your [most serious/] injury cause you to
a. limit your daily activities for at least one day

• 1: Yes
• 2: No

Physical health (ICP) - Question identifier:ICP_Q50

Did your [most serious/] injury cause you to
b. seek treatment from a medical professional

• 1: Yes
• 2: No

Physical health (ICP) - Question identifier:ICP_Q60

Did your [most serious/] injury cause you to
c. take time off from caregiving duties

• 1: Yes
• 2: No

Physical health (ICP) - Question identifier:ICP_Q70

Did your [most serious/] injury cause you to
d. take time off from your job or business

• 1: Yes
• 2: No

Emotional health/Stress (ICS) - Question identifier:ICS_Q10

Do you feel you had a choice in taking on your caregiving responsibilities during the past 12 months?

• 1: Yes
• 2: No

Emotional health/Stress (ICS) - Question identifier:ICS_Q20

Has your relationship with the [person/persons] you have been caring for strengthened during this time?

• 1: Yes
• 2: No
• 3: Stayed the same

Emotional health/Stress (ICS) - Question identifier:ICS_Q30

How rewarding have your caregiving experiences been during the past 12 months?

• 1: Very rewarding
• 2: Rewarding
• 3: Somewhat rewarding
• 4: Not at all rewarding

Emotional health/Stress (ICS) - Question identifier:ICS_Q40

How stressful have your caregiving responsibilities been during the past 12 months?

• 1: Very stressful
• 2: Stressful
• 3: Somewhat stressful
• 4: Not at all stressful

Find it stressful - Related to caregiving (FIS) - Question identifier:FIS_Q10

What specifically did you find stressful about caregiving?

• 11: Managing your own emotions
• 12: Meeting the needs of your [care receiver/care receivers]
• 13: Making decisions for your [care receiver/care receivers]
• 14: Dealing with the declining health of your [care receiver/care receivers]
• 15: Managing family conflict about caregiving
• 16: Finding services for your [care receiver/care receivers]
• 17: Getting along with your [care receiver/care receivers] or managing their mood
• 18: Balancing caregiving and other responsibilities
• 19: Other

Caregiving responsibilities and the respondent's health (CRH) - Question identifier:CRH_Q10

During the past 12 months, have your caregiving responsibilities caused you to feel
a. tired

• 1: Yes
• 2: No

Caregiving responsibilities and the respondent's health (CRH) - Question identifier:CRH_Q20

During the past 12 months, have your caregiving responsibilities caused you to feel
b. worried or anxious

• 1: Yes
• 2: No

Caregiving responsibilities and the respondent's health (CRH) - Question identifier:CRH_Q30

During the past 12 months, have your caregiving responsibilities caused you to feel
c. overwhelmed

• 1: Yes
• 2: No

Caregiving responsibilities and the respondent's health (CRH) - Question identifier:CRH_Q35

During the past 12 months, have your caregiving responsibilities caused you to feel
d. lonely or isolated

• 1: Yes
• 2: No

Caregiving responsibilities and the respondent's health (CRH) - Question identifier:CRH_Q40

During the past 12 months, have your caregiving responsibilities caused you to feel
e. short-tempered or irritable

• 1: Yes
• 2: No

Caregiving responsibilities and the respondent's health (CRH) - Question identifier:CRH_Q50

During the past 12 months, have your caregiving responsibilities caused you to feel
f. resentful

• 1: Yes
• 2: No

Caregiving responsibilities and the respondent's health (CRH) - Question identifier:CRH_Q60

During the past 12 months, have your caregiving responsibilities caused you to feel
g. depressed

• 1: Yes
• 2: No

Caregiving responsibilities and the respondent's health (CRH) - Question identifier:CRH_Q70

During the past 12 months, have your caregiving responsibilities caused you to experience
a. loss of appetite

• 1: Yes
• 2: No

Caregiving responsibilities and the respondent's health (CRH) - Question identifier:CRH_Q80

During the past 12 months, have your caregiving responsibilities caused you to experience
b. disturbed sleep

• 1: Yes
• 2: No

Caregiving responsibilities and the respondent's health (CRH) - Question identifier:CRH_Q90

During the past 12 months, have your caregiving responsibilities caused you to experience
c. any other symptoms

• 1: Yes
• 2: No

Caregiving responsibilities and the respondent's health (CRH) - Question identifier:CRH_Q95

What were these symptoms?

Long Answer Length = 80

Coping methods to help the respondent deal with caregiving responsibilities (CMC) - Question identifier:CMC_Q10

There are many ways of handling difficult situations. In the past 12 months, have you used any specific coping methods to help you deal with your caregiving responsibilities?

• 1: Yes
• 2: No

Coping methods to help the respondent deal with caregiving responsibilities (CMC) - Question identifier:CMC_Q20

What were these coping methods?

• 11: Exercising, walking or yoga
• 12: Professional counselling or therapy
• 13: Socializing or talking to friends or other caregivers
• 14: Religious or spiritual practices, or meditation
• 15: Reading, watching television or listening to music
• 16: Eating, drinking or smoking
• 17: Other

Coping methods to help the respondent deal with caregiving responsibilities (CMC) - Question identifier:CMC_Q30

In the past 12 months, have you used prescription drugs to help you cope with your caregiving responsibilities?

• 1: Yes
• 2: No

Finances (ICF) - Question identifier:ICF_R210A

The next questions ask about expenses you may have incurred in the past 12 months as a result of all your caregiving responsibilities. These are out-of-pocket expenses that are not reimbursed.

Finances (ICF) - Question identifier:ICF_Q210

In the past 12 months, have you had any out-of-pocket expenses for
a. home modifications to accommodate your [care receiver's/care receivers'] needs

• 1: Yes
• 2: No

Finances (ICF) - Question identifier:ICF_Q220

In the past 12 months, have you had any out-of-pocket expenses for
b. professional services for your [care receiver's/care receivers'] healthcare or rehabilitation

• 1: Yes
• 2: No

Finances (ICF) - Question identifier:ICF_Q230

In the past 12 months, have you had any out-of-pocket expenses for
c. hiring people to help with your [care receiver's/care receivers'] daily activities

• 1: Yes
• 2: No

Finances (ICF) - Question identifier:ICF_Q240

In the past 12 months, have you had any out-of-pocket expenses for
d. transportation, travel or accommodation because of your caregiving responsibilities

• 1: Yes
• 2: No

Finances (ICF) - Question identifier:ICF_Q250

In the past 12 months, have you had any out-of-pocket expenses for
e. specialized aids or devices for your [care receiver's/care receivers'] use

• 1: Yes
• 2: No

Finances (ICF) - Question identifier:ICF_Q260

In the past 12 months, have you had any out-of-pocket expenses for
f. prescription or non-prescription drugs for your [care receiver's/care receivers'] use

• 1: Yes
• 2: No

Best estimate of expenses (BEE) - Question identifier:BEE_R10B

Expenses

Best estimate of expenses (BEE) - Question identifier:BEE_Q10

What is your best estimate of these expenses?
a. Home modifications

Min = 0; Max = 99999

Best estimate of expenses (BEE) - Question identifier:BEE_Q15

What is your best estimate of these expenses?
b. Professional services for healthcare or rehabilitation

Min = 0; Max = 99999

Best estimate of expenses (BEE) - Question identifier:BEE_Q20

What is your best estimate of these expenses?
c. Hiring people to help with daily acitivites

Min = 0; Max = 99999

Best estimate of expenses (BEE) - Question identifier:BEE_Q25

What is your best estimate of these expenses?
d. Transportation, travel or accommodation

Min = 0; Max = 99999

Best estimate of expenses (BEE) - Question identifier:BEE_Q30

What is your best estimate of these expenses?
e. Specialized aids or devices

Min = 0; Max = 99999

Best estimate of expenses (BEE) - Question identifier:BEE_Q35

What is your best estimate of these expenses?
f. Prescription or non-prescription drugs

Min = 0; Max = 99999

Best estimate of expenses (BEE) - Question identifier:BEE_Q40

Which of the following categories did these expenses fall into?
Home modifications

• 1: Less than $200
• 2: $200 to less than $500
• 3: $500 to less than $1,000
• 4: $1,000 to less than $2,000
• 5: $2,000 to less than $5,000
• 6: $5,000 or more

Best estimate of expenses (BEE) - Question identifier:BEE_Q45

Which of the following categories did these expenses fall into?
Professional services for healthcare or rehabilitation

• 1: Less than $200
• 2: $200 to less than $500
• 3: $500 to less than $1,000
• 4: $1,000 to less than $2,000
• 5: $2,000 to less than $5,000
• 6: $5,000 or more

Best estimate of expenses (BEE) - Question identifier:BEE_Q50

Which of the following categories did these expenses fall into?
Hiring people to help with daily activities

• 1: Less than $200
• 2: $200 to less than $500
• 3: $500 to less than $1,000
• 4: $1,000 to less than $2,000
• 5: $2,000 to less than $5,000
• 6: $5,000 or more

Best estimate of expenses (BEE) - Question identifier:BEE_Q55

Which of the following categories did these expenses fall into?
Transportation, travel or accommodation

• 1: Less than $200
• 2: $200 to less than $500
• 3: $500 to less than $1,000
• 4: $1,000 to less than $2,000
• 5: $2,000 to less than $5,000
• 6: $5,000 or more

Best estimate of expenses (BEE) - Question identifier:BEE_Q60

Which of the following categories did these expenses fall into?
Specialized aids or devices

• 1: Less than $200
• 2: $200 to less than $500
• 3: $500 to less than $1,000
• 4: $1,000 to less than $2,000
• 5: $2,000 to less than $5,000
• 6: $5,000 or more

Best estimate of expenses (BEE) - Question identifier:BEE_Q65

Which of the following categories did these expenses fall into?
Prescription or non-prescription drugs

• 1: Less than $200
• 2: $200 to less than $500
• 3: $500 to less than $1,000
• 4: $1,000 to less than $2,000
• 5: $2,000 to less than $5,000
• 6: $5,000 or more

Finances - Other (ICF2) - Question identifier:ICF2_Q270

During the past 12 months, have you had any other out-of-pocket expenses because of your caregiving responsibilities?

• 1: Yes
• 2: No

Finances - Other (ICF2) - Question identifier:ICF2_Q271

What were these expenses for?

Long Answer Length = 200

Finances - Other (ICF2) - Question identifier:ICF2_Q272

What is your best estimate of these expenses?

Min = 0; Max = 99999

Finances - Other (ICF2) - Question identifier:ICF2_Q273

Which of the following categories did these expenses fall into?

• 1: Less than $200
• 2: $200 to less than $500
• 3: $500 to less than $1,000
• 4: $1,000 to less than $2,000
• 5: $2,000 to less than $5,000
• 6: $5,000 or more

Finances - Other (ICF2) - Question identifier:ICF2_Q280

During the past 12 months, have you experienced financial hardship because of your caregiving responsibilities?

• 1: Yes
• 2: No

Finances - Other (ICF2) - Question identifier:ICF2_Q290

Have you had to
a. borrow money from family or friends

• 1: Yes
• 2: No

Finances - Other (ICF2) - Question identifier:ICF2_Q300

Have you had to
b. take loans from a bank or financial institution

• 1: Yes
• 2: No

Finances - Other (ICF2) - Question identifier:ICF2_Q310

Have you had to
c. use or defer savings

• 1: Yes
• 2: No

Finances - Other (ICF2) - Question identifier:ICF2_Q320

Have you had to
d. modify your spending

• 1: Yes
• 2: No

Finances - Other (ICF2) - Question identifier:ICF2_Q330

Have you had to
e. sell off assets

• 1: Yes
• 2: No

Finances - Other (ICF2) - Question identifier:ICF2_Q340

Have you had to
f. file for bankruptcy

• 1: Yes
• 2: No

Finances - Other (ICF2) - Question identifier:ICF2_Q350

Have you had to do anything else?

• 1: Yes
• 2: No

Finances - Other (ICF2) - Question identifier:ICF2_Q355

What other financial hardships have you experienced?

Long Answer Length = 80

Education - School Attendance (ESC1) - Question identifier:ESC1_Q01

Are you currently attending school, college, CEGEP or university?

• 1: Yes
• 2: No

Education - Minimum block (EDM) - Question identifier:EDM_Q01

What type of educational institution are you attending?

• 1: Elementary, junior high school or high school
• 2: Trade school, college, CEGEP or other non-university institution
• 3: University

Education - Minimum block (EDM) - Question identifier:EDM_Q02

Are you enrolled as a full-time student, part-time student or both?

• 1: Full-time student
• 2: Part-time student
• 3: Both full-time and part-time student

Education - Highest Degree (EHG3) - Question identifier:EHG3_Q01

What is the highest certificate, diploma or degree that you have completed?

• 1: Less than high school diploma or its equivalent
• 2: High school diploma or a high school equivalency certificate
• 3: Trade certificate or diploma
• 4: College, CEGEP or other non-university certificate or diploma (e.g., other than trades certificates or diplomas)
• 5: University certificate or diploma below the bachelor's level
• 6: Bachelor's degree (e.g., B.A., B.Sc., LL.B.)
• 7: University certificate, diploma, degree above the bachelor's level

Education - Highest Degree (EHG3) - Question identifier:EHG3_Q02

Was that a

• 1: high school graduation diploma
• 2: high school equivalency certificate (e.g., General Educational Development (GED) or Adult Basic Education (ABE))

Education - Highest Degree (EHG3) - Question identifier:EHG3_Q03

Was that a

• 1: Registered Apprenticeship certificate (Include Certificate of Qualification, Journeyperson's designation)
• 2: other trades certificate or diploma from a trade school or a professional training center

Education - Highest Degree (EHG3) - Question identifier:EHG3_Q04

Was that a certificate or diploma from a program of

• 1: less than 3 months
• 2: 3 months to less than 1 year
• 3: 1 year to 2 years
• 4: more than 2 years

Education - Highest Degree (EHG3) - Question identifier:EHG3_Q05

Was that a

• 1: university certificate or diploma above the bachelor's level
• 2: degree in medicine, dentistry, veterinary medicine or optometry
• 3: master's degree
• 4: earned doctorate (Exclude honorary doctorates)

Education (ICE) - Question identifier:ICE_Q20

In the past 12 months, have you postponed enrolling in an education or training program because of your caregiving responsibilities?

• 1: Yes
• 2: No

Education (ICE) - Question identifier:ICE_Q30

Did you postpone plans

• 1: indefinitely
• 2: to the next available starting date
• 3: to some other date

Education (ICE) - Question identifier:ICE_Q50

In the past 12 months, have your studies been affected because of your caregiving responsibilities?

• 1: Yes
• 2: No

Class of worker (COW) - Question identifier:COW_R10

The next questions ask about the job or business at which you last worked.

Class of worker (COW) - Question identifier:COW_Q10

Were you an employee or self-employed?

• 1: Employee
• 2: Self-employed
• 3: Working in a family business without pay

Work activities - Telework information (WTI) - Question identifier:WTI_Q110

Excluding overtime, [do/did] you usually work any of your scheduled hours at home?

• 1: Yes
• 2: No
• 3: Not applicable

Work activities - Telework information (WTI) - Question identifier:WTI_Q120

How many paid hours per week [do/did] you usually work at home?

Min = 0; Max = 999

Work activities - Telework information (WTI) - Question identifier:WTI_Q130

What is the main reason you [do/did] some of your work at home?

• 01: Taking care of children
• 02: Provide care to family or friends for long-term health problem
• 03: Other personal or family responsibilities
• 04: Requirements of the job or no choice
• 05: Home [is/was] your usual place of work
• 06: Better conditions of work
• 07: Saves time or money
• 08: [You/He/She] [live/lived] too far from work to commute
• 09: Other

Industry (IND) - Question identifier:IND_Q11

What was the name of your business?

Long Answer Length = 80

Industry (IND) - Question identifier:IND_Q12

For whom did you work?

Long Answer Length = 80

Industry (IND) - Question identifier:IND_Q13

What kind of business, industry or service was this?

Long Answer Length = 80

Occupation (OCP) - Question identifier:OCP_Q14

What was your work or occupation?

Long Answer Length = 80

Occupation (OCP) - Question identifier:OCP_Q15

In this work, what were your main activities?

Long Answer Length = 80

Union contract / Collective Agreement (UCA) - Question identifier:UCA_Q10

[Are/Were] you a union member or covered by a union contract or collective agreement in this job?

• 1: Yes
• 2: No

Number of weeks employed (NWE) - Question identifier:NWE_Q110

For how many weeks during the past 12 months were you employed?

• 01: 1
• 02: 2
• 03: 3
• 04: 4
• 05: 5
• 06: 6
• 07: 7
• 08: 8
• 09: 9
• 10: 10
• 11: 11
• 12: 12
• 13: 13
• 14: 14
• 15: 15
• 16: 16
• 17: 17
• 18: 18
• 19: 19
• 20: 20
• 21: 21
• 22: 22
• 23: 23
• 24: 24
• 25: 25
• 26: 26
• 27: 27
• 28: 28
• 29: 29
• 30: 30
• 31: 31
• 32: 32
• 33: 33
• 34: 34
• 35: 35
• 36: 36
• 37: 37
• 38: 38
• 39: 39
• 40: 40
• 41: 41
• 42: 42
• 43: 43
• 44: 44
• 45: 45
• 46: 46
• 47: 47
• 48: 48
• 49: 49
• 50: 50
• 51: 51
• 52: 52

Usual Hours Worked (UHW) - Question identifier:UHW_Q16

[Excluding overtime, on average, how many paid hours do you usually work per week?/On average, how many hours do you usually work per week?]

Min = 0.0; Max = 999.9

Work activities - Hours Worked (UWS) - Question identifier:UWS_Q230

Which of the following best describes your usual work schedule?

• 01: A regular daytime schedule or shift
• 02: A regular evening shift
• 03: A regular night shift
• 04: A rotating shift (One that changes periodically from days to evenings or to nights)
• 05: A split shift (One consisting of two or more distinct periods each day)
• 06: On call
• 07: An irregular schedule
• 08: Other

Terms of employment (TOE) - Question identifier:TOE_Q240

[Was/Is] your job permanent, or is there some way that it [was/is] not permanent?

• 1: Permanent
• 2: Not permanent (e.g., seasonal, temporary, term, casual)

Terms of employment (TOE) - Question identifier:TOE_Q241

In what way [was/is] your job not permanent?

• 1: Seasonal (A job that ends with the off-season, e.g., an employee who works in farming, fishing or tourism.)
• 2: Temporary, term or contract (A non-seasonal job that has a fixed end date.)
• 3: Casual job (Work when needed by your employer, e.g., a substitute teacher, "spare" or "fill-in".)
• 4: Other

Flexible work arrangements (FWA) - Question identifier:FWA_Q120

[Do/Did] you have a flexible schedule that [allows/allowed] you to choose the time to begin and end your work day?

• 1: Yes
• 2: No

Flexible work arrangements (FWA) - Question identifier:FWA_Q132

[Does/Did] your employer provide you with
a. the option to work part-time

• 1: Yes
• 2: No

Flexible work arrangements (FWA) - Question identifier:FWA_Q133

[Does/Did] your employer provide you with
b. the ability to take leave, paid or unpaid, to take care of your children

• 1: Yes
• 2: No

Flexible work arrangements (FWA) - Question identifier:FWA_Q134

[Does/Did] your employer provide you with
c. the ability to take leave, paid or unpaid, to take care of your spouse, partner or other family members

• 1: Yes
• 2: No

Flexible work arrangements (FWA) - Question identifier:FWA_Q136

[Does/Did] your employer provide you with
d. the ability to take extended leave without pay for personal reasons

• 1: Yes
• 2: No

Flexible work arrangements (FWA) - Question identifier:FWA_Q137

[Does/Did] your employer provide you with
e. the option to telework

• 1: Yes
• 2: No

Flexible work arrangements (FWA) - Question identifier:FWA_Q150

Do you think you could [use/have used] these flexible work arrangements without a negative impact on your career?

• 1: Yes
• 2: No

Work-life balance (WLB) - Question identifier:WLB_Q10

In the past 12 months, how often has it been difficult to fulfill family responsibilities because of the amount of time you spent on your job?

• 1: Always
• 2: Often
• 3: Sometimes
• 4: Rarely
• 5: Never

Work-life balance (WLB) - Question identifier:WLB_Q20

In the past 12 months, how often has it been difficult to concentrate or fulfill your work responsibilities because of your family responsibilities?

• 1: Always
• 2: Often
• 3: Sometimes
• 4: Rarely
• 5: Never

Satisfaction of respondent with current balance between job and home life (SRC) - Question identifier:SRC_Q10

How satisfied are you with the current balance between your job and home life?

• 1: Very satisfied
• 2: Satisfied
• 3: Neither satisfied nor dissatisfied
• 4: Dissatisfied
• 5: Very dissatisfied

Satisfaction of respondent with current balance between job and home life (SRC) - Question identifier:SRC_Q20

Why are you dissatisfied?

• 11: Not enough time for family (Include spouse or partner and children.)
• 12: Spend too much time on job or main activity
• 13: Not enough time for other activities (Exclude work and family related activities.)
• 14: Cannot find suitable employment
• 15: Employment related reasons (Exclude spending too much time on job.)
• 16: Health reasons (Include sleep disorders.)
• 17: Family related reasons (Exclude not enough time for family.)
• 18: Other

Impact of caregiving on employment in the last 12 months - Work leave (ITL) - Question identifier:ITL_R10

The next questions ask about the impact that caregiving may have had on your employment.

Impact of caregiving on employment in the last 12 months - Work leave (ITL) - Question identifier:ITL_Q10

How many times during the past 12 months did you go to work late, leave early or take time off during the day because of your caregiving responsibilities?

Min = 0; Max = 99

Impact of caregiving on employment in the last 12 months - Work leave (ITL) - Question identifier:ITL_Q20

Were you paid for this time off?

• 1: Yes
• 2: No
• 3: Some paid, some unpaid

Impact of caregiving on employment in the last 12 months - Work leave (ITL) - Question identifier:ITL_Q30

Did you reduce your regular weekly hours of work because of your caregiving responsibilities?

• 1: Yes
• 2: No

Impact of caregiving on employment in the last 12 months - Work leave (ITL) - Question identifier:ITL_Q40

How many fewer hours per week did you work because of your caregiving responsibilities?

Min = 0.0; Max = 999.9

Impact of caregiving on employment in the last 12 months - Work leave (ITL) - Question identifier:ITL_Q50

Did you lose some or all of your employment benefits because of this reduction in hours?

• 1: Yes, some
• 2: Yes, all
• 3: No

Impact of caregiving on employment in the last 12 months - Work leave (ITL) - Question identifier:ITL_Q51

What benefits did you lose?
a. Extended health benefits

• 1: Yes
• 2: No

Impact of caregiving on employment in the last 12 months - Work leave (ITL) - Question identifier:ITL_Q52

What benefits did you lose?
b. Dental benefits

• 1: Yes
• 2: No

Impact of caregiving on employment in the last 12 months - Work leave (ITL) - Question identifier:ITL_Q53

What benefits did you lose?
c. Employer-provided pension

• 1: Yes
• 2: No

Impact of caregiving on employment in the last 12 months - Work leave (ITL) - Question identifier:ITL_Q54

What benefits did you lose?
d. Life insurance

• 1: Yes
• 2: No

Impact of caregiving on employment in the last 12 months - Work leave (ITL) - Question identifier:ITL_Q55

What benefits did you lose?
e. Prescription medication coverage

• 1: Yes
• 2: No

Impact of caregiving on employment in the last 12 months - Work leave (ITL) - Question identifier:ITL_Q56

What benefits did you lose?
f. Any other type of benefit

• 1: Yes
• 2: No

Impact of caregiving on employment in the last 12 months - Work leave (ITL) - Question identifier:ITL_Q57

What other type of benefit did you lose?

Long Answer Length = 80

Impact of caregiving on employment in the last 12 months - Full days off work (ITA) - Question identifier:ITA_Q10

How many times during the past 12 months did you take one or more days off from your job because of your caregiving responsibilities?

Min = 0; Max = 99

Impact of caregiving on employment in the last 12 months - Full days off work (ITA) - Question identifier:ITA_Q20

How long was your longest time off?

• 1: Days
• 2: Weeks
• 3: Months

Impact of caregiving on employment in the last 12 months - Full days off work (ITA) - Question identifier:ITA_Q30

Was this time off paid or unpaid?

• 1: Paid
• 2: Unpaid
• 3: Partly paid

Impact of caregiving on employment in the last 12 months - Full days off work (ITA) - Question identifier:ITA_Q35

What were your annual earnings before taxes from this job?

Min = -9999999; Max = 9999999

Impact of caregiving on employment in the last 12 months - Gave up employment entirely (ITE) - Question identifier:ITE_Q10

During the past 12 months, did you quit a job because of your caregiving responsibilities?

• 1: Yes
• 2: No

Impact of caregiving on employment in the last 12 months - Gave up employment entirely (ITE) - Question identifier:ITE_Q20

For how long were you unemployed after you quit your job?

• 1: Weeks
• 2: Months

Impact of caregiving on employment in the last 12 months - Gave up employment entirely (ITE) - Question identifier:ITE_Q30

What circumstances would have enabled you to keep working while providing care at the same time?

• 11: Availability of acceptable alternative care
• 12: Affordable alternative care
• 13: Ability to work flexible hours
• 14: Ability to work fewer hours
• 15: Help from family
• 16: You did not want to keep working or you preferred to care full-time
• 17: Other

Impact of caregiving on employment in the last 12 months - Gave up employment entirely (ITE) - Question identifier:ITE_Q35

What were your annual earnings before taxes from this job?

Min = -9999999; Max = 9999999

Impact of caregiving on employment in the last 12 months - Loss of Job (ITJ) - Question identifier:ITJ_Q10

During the past 12 months, were you fired, laid off, or asked to resign from a job because of your caregiving responsibilities?

• 1: Yes
• 2: No

Impact of caregiving on employment in the last 12 months - Loss of Job (ITJ) - Question identifier:ITJ_Q20

How long were you unemployed after you lost your job?

• 1: Weeks
• 2: Months

Impact of caregiving on employment in the last 12 months - Loss of Job (ITJ) - Question identifier:ITJ_Q35

What were your annual earnings before taxes from this job?

Min = -9999999; Max = 9999999

Impact of caregiving on employment in the last 12 months - Other impacts (ITO) - Question identifier:ITO_Q10

During the past 12 months, did you turn down a job offer or promotion, or decide not to apply for a job, because of your caregiving responsibilities?

• 1: Yes
• 2: No

Impact of caregiving on employment in the last 12 months - Other impacts (ITO) - Question identifier:ITO_Q20

Did you take a less demanding job because of your caregiving responsibilities?

• 1: Yes
• 2: No

Impact of caregiving on employment in the last 12 months - Other impacts (ITO) - Question identifier:ITO_Q25

Did this less demanding job pay less or more than your previous job?

• 1: Paid less
• 2: Paid more
• 3: Paid the same

Impact of caregiving on employment in the last 12 months - Other impacts (ITO) - Question identifier:ITO_Q26

Did this less demanding job provide fewer or more benefits than your previous job?

• 1: Fewer benefits
• 2: More benefits
• 3: Same benefits

Interest in employment (INE) - Question identifier:INE_Q10

Have your caregiving responsibilities prevented you from working at a paid job?

• 1: Yes
• 2: No

Interest in employment (INE) - Question identifier:INE_Q20

Are you interested in finding paid employment?

• 1: Yes
• 2: No

Interest in employment (INE) - Question identifier:INE_Q30

Would you like a full or part-time job?

• 1: Full-time
• 2: Part-time

Interest in employment (INE) - Question identifier:INE_Q41

What would enable you to work at a paid job?

• 11: Ability to work from home
• 12: Flexible hours
• 13: Affordable care for care receiver
• 14: Possibility of working fewer hours
• 15: Better public transportation
• 16: Access to affordable childcare
• 17: Other

Impact of caregiving on employment prior to the last 12 months - Reducing hours (IPL) - Question identifier:IPL_R05

The next questions ask about the impact that caregiving may have had on your employment over the years prior to the past 12 months.

Impact of caregiving on employment prior to the last 12 months - Reducing hours (IPL) - Question identifier:IPL_Q05

Excluding the past 12 months, have you ever worked at a paid job while providing care?

• 1: Yes
• 2: No

Impact of caregiving on employment prior to the last 12 months - Reducing hours (IPL) - Question identifier:IPL_Q10

Excluding the past 12 months, did you ever reduce your regular weekly hours of employment because of your caregiving responsibilities?

• 1: Yes
• 2: No

Impact of caregiving on employment prior to the last 12 months - Reducing hours (IPL) - Question identifier:IPL_Q20

Did you lose some or all of your employment benefits because you reduced your weekly hours?

• 1: Yes, some
• 2: Yes, all
• 3: No

Impact of caregiving on employment prior to the last 12 months - Leave (days off) (IPA) - Question identifier:IPA_Q10

Excluding the past 12 months, did you ever have to take a leave from a job because of your caregiving responsibilities?

• 1: Yes
• 2: No

Impact of caregiving on employment prior to the last 12 months - Leave (days off) (IPA) - Question identifier:IPA_Q20

How long was your longest leave?

• 1: Days
• 2: Weeks
• 3: Months
• 4: Years

Impact of caregiving on employment prior to the last 12 months - Leave (days off) (IPA) - Question identifier:IPA_Q30

Was this leave paid or unpaid?

• 1: Paid
• 2: Unpaid
• 3: Partly paid

Impact of caregiving on employment prior to the last 12 months - Leave (days off) (IPA) - Question identifier:IPA_Q35

What were your annual earnings before taxes from this job?

Min = -9999999; Max = 9999999

Impact of caregiving on employment prior to the last 12 months - Gave up employment entirely (IPE) - Question identifier:IPE_Q10

Excluding the past 12 months, how many times did you have to quit a job because of your caregiving responsibilities?

Min = 0; Max = 999

Impact of caregiving on employment prior to the last 12 months - Gave up employment entirely (IPE) - Question identifier:IPE_Q30

What circumstances would have enabled you to keep working while providing care at the same time?

• 11: Availability of acceptable alternative care
• 12: Affordable alternative care
• 13: Ability to work flexible hours
• 14: Ability to work fewer hours
• 15: Help from family
• 16: You did not want to keep working or you preferred to care full-time
• 17: Other

Impact of caregiving on employment prior to the last 12 months - Other impacts (IPO) - Question identifier:IPO_Q10

Excluding the past 12 months, how many times were you ever fired, asked to resign or laid off from a job because of your caregiving responsibilities?

Min = 0; Max = 999

Impact of caregiving on employment prior to the last 12 months - Other impacts (IPO) - Question identifier:IPO_Q20

Excluding the past 12 months, how many times did you turn down a job offer or promotion, or take a less demanding job because of your caregiving responsibilities?

Min = 0; Max = 999

Impact of caregiving on employment - Plans for retirement (IPR) - Question identifier:IPR_Q10

Have you ever retired from a job or business?

• 1: Yes
• 2: No

Impact of caregiving on employment - Plans for retirement (IPR) - Question identifier:IPR_Q20

[Was the timing of your retirement/Will the timing of your retirement be] affected because of your caregiving responsibilities?

• 1: Yes
• 2: No

Impact of caregiving on employment - Plans for retirement (IPR) - Question identifier:IPR_Q30

[Did you retire earlier or later than you would have preferred to?/Will you retire earlier or later than you would like to?]

• 1: Earlier
• 2: Later
• 3: Neither earlier nor later

Impact of caregiving on employment - Plans for retirement (IPR) - Question identifier:IPR_Q40

How much [earlier/later]?

• 2: Months
• 3: Years

Impact of caregiving on employment - Plans for retirement (IPR) - Question identifier:IPR_Q43

Indicate in months.

Min = 0; Max = 99

Impact of caregiving on employment - Plans for retirement (IPR) - Question identifier:IPR_Q44

Indicate in years.

Min = 0.0; Max = 99.9

Impact of caregiving on employment - Plans for retirement (IPR) - Question identifier:IPR_Q50

What were your annual earnings before taxes from the last job you held before retiring?

Min = -9999999; Max = 9999999

Dwelling of Respondent (DOR) - Question identifier:DOR_R110A

The following questions are about your housing and neighbourhood characteristics.

Dwelling of Respondent (DOR) - Question identifier:DOR_Q110

In what type of dwelling are you now living?

• 01: Single detached house
• 02: Semi-detached or double (side by side)
• 03: Garden home, town-house or row house
• 04: Duplex (one above the other)
• 05: Low-rise apartment (less than 5 stories)
• 06: High-rise apartment (5 or more stories)
• 07: Mobile home or trailer
• 08: Other

Ownership of Dwelling by Respondent (ODR) - Question identifier:ODR_Q10

Is this dwelling

• 1: owned by you or a member of this household, even if it is still being paid for
• 2: rented, even if no cash rent is paid

Ownership of Dwelling by Respondent (ODR) - Question identifier:ODR_Q20

Is there a mortgage on this dwelling?

• 1: Yes
• 2: No

Length of time Respondent has lived in Dwelling (LRD) - Question identifier:LRD_Q10

How long have you lived in this dwelling?

• 1: Less than 6 months
• 2: 6 months to less than 1 year
• 3: 1 year to less than 3 years
• 4: 3 years to less than 5 years
• 5: 5 years to less than 10 years
• 6: 10 years and over

Length of time Respondent has lived in Neighbourhood (LRN) - Question identifier:LRN_Q10

How long have you lived in this neighbourhood?

• 1: Less than 6 months
• 2: 6 months to less than 1 year
• 3: 1 year to less than 3 years
• 4: 3 years to less than 5 years
• 5: 5 years to less than 10 years
• 6: 10 years and over

Length of time Respondent has lived in city or local Community (LRC) - Question identifier:LRC_Q20

How long have you lived in this city or local community?

• 1: Less than 6 months
• 2: 6 months to less than 1 year
• 3: 1 year to less than 3 years
• 4: 3 years to less than 5 years
• 5: 5 years to less than 10 years
• 6: 10 years and over

Questions about the immediate neighbourhood of respondent (QIN) - Question identifier:QIN_R10

Now, a few questions about your more immediate neighbourhood.

Questions about the immediate neighbourhood of respondent (QIN) - Question identifier:QIN_Q10

Would you say that you know

• 1: most of the people in your neighbourhood
• 2: many of the people in your neighbourhood
• 3: a few of the people in your neighbourhood
• 4: none of the people in your neighbourhood

Questions about the immediate neighbourhood of respondent (QIN) - Question identifier:QIN_Q20

Would you say your neighbourhood is a place where neighbours help each other?

• 1: Yes
• 2: No

Questions about the immediate neighbourhood of respondent (QIN) - Question identifier:QIN_Q30

In the past month, have you done a favour for a neighbour?

• 1: Yes
• 2: No
• 3: [You/He/She] just moved into the area

Questions about the immediate neighbourhood of respondent (QIN) - Question identifier:QIN_Q40

In the past month, have any of your neighbours done a favour for you?

• 1: Yes
• 2: No
• 3: [You/He/She] just moved into the area

Public transportation in respondent's neighbourhood (PTN) - Question identifier:PTN_Q10

In your neighbourhood, is public transportation available?

• 1: Yes
• 2: No

Accessible housing of respondent (AHR) - Question identifier:AHR_R100A

The next questions ask about how accessible your home may be to someone using a wheelchair.

Accessible housing of respondent (AHR) - Question identifier:AHR_Q100

Does your home have
a. a street level entrance with no steps

• 1: Yes
• 2: No

Accessible housing of respondent (AHR) - Question identifier:AHR_Q110

Does your home have
b. a ramp at the entrance

• 1: Yes
• 2: No

Accessible housing of respondent (AHR) - Question identifier:AHR_Q120

Does your home have
c. doorways that are wide enough for a wheelchair

• 1: Yes
• 2: No

Accessible housing of respondent (AHR) - Question identifier:AHR_Q130

Does your home have
d. lowered counters in the kitchen or bathroom

• 1: Yes
• 2: No

Accessible housing of respondent (AHR) - Question identifier:AHR_Q140

Does your home have
e. grab bars in the bathroom

• 1: Yes
• 2: No

Accessible housing of respondent (AHR) - Question identifier:AHR_Q150

Does your home have
f. easy to open doors, including lever handles

• 1: Yes
• 2: No

Accessible housing of respondent (AHR) - Question identifier:AHR_Q160

Does your home have
g. an elevator or lift device

• 1: Yes
• 2: No

Accessible housing of respondent (AHR) - Question identifier:AHR_Q200

Are you aware of any government grants to make homes more accessible to persons with disabilities?

• 1: Yes
• 2: No

Self Rated Health (SRH) - Question identifier:SRH_R110A

The following set of questions asks about your day-to-day health. By health, we mean not only the absence of disease or injury but also physical, mental and social well-being.

Self Rated Health (SRH) - Question identifier:SRH_Q110

In general, how would you rate
a. your health

• 1: Excellent
• 2: Very good
• 3: Good
• 4: Fair
• 5: Poor

Self Rated Health (SRH) - Question identifier:SRH_Q115

In general, how would you rate
b. your mental health

• 1: Excellent
• 2: Very good
• 3: Good
• 4: Fair
• 5: Poor

Healthy Eating Habits (HEH) - Question identifier:HEH_Q100

In general, would you say that your eating habits are

• 1: excellent
• 2: very good
• 3: good
• 4: fair
• 5: poor

Physical activity (PHS) - Question identifier:PHS_Q10

In the past week, how many times did you participate in moderate or vigorous physical activity for leisure, work, housework or transportation?

Min = 0; Max = 99

Physical activity (PHS) - Question identifier:PHS_Q20

About how much time did you spend on [this/each] occasion?

• 1: Less than 15 minutes
• 2: 16 to 30 minutes
• 3: 31 to 60 minutes
• 4: More than 1 hour

Life satisfaction of respondent (LSR) - Question identifier:LSR_Q110

Using a scale of 0 to 10, where 0 means "Very dissatisfied" and 10 means "Very satisfied", how do you feel about your life as a whole right now?

• 00: 0 - Very dissatisfied
• 01: 1
• 02: 2
• 03: 3
• 04: 4
• 05: 5
• 06: 6
• 07: 7
• 08: 8
• 09: 9
• 10: 10 - Very satisfied

Self-rated stress (SRS) - Question identifier:SRS_Q10

Thinking of the amount of stress in your life, would you say that most days are

• 1: not at all stressful
• 2: not very stressful
• 3: a bit stressful
• 4: quite a bit stressful
• 5: extremely stressful

Sleep (SLP) - Question identifier:SLP_Q110

Do you regularly have trouble going to sleep or staying asleep?

• 1: Yes
• 2: No

Sleep (SLP) - Question identifier:SLP_Q120

Do you take any medication to help you sleep?

• 1: Yes
• 2: No

Feelings (FLG) - Question identifier:FLG_Q310

For each of the following six questions, please indicate whether the statement describes your feelings, using the categories: yes, more or less, or no.
a. I experience a general sense of emptiness.

• 1: Yes
• 2: More or less
• 3: No

Feelings (FLG) - Question identifier:FLG_Q320

For each of the following six questions, please indicate whether the statement describes your feelings, using the categories: yes, more or less, or no.
b. There are plenty of people I can rely on when I have problems.

• 1: Yes
• 2: More or less
• 3: No

Feelings (FLG) - Question identifier:FLG_Q330

For each of the following six questions, please indicate whether the statement describes your feelings, using the categories: yes, more or less, or no.
c. There are many people I can trust completely.

• 1: Yes
• 2: More or less
• 3: No

Feelings (FLG) - Question identifier:FLG_Q340

For each of the following six questions, please indicate whether the statement describes your feelings, using the categories: yes, more or less, or no.
d. There are enough people I feel close to.

• 1: Yes
• 2: More or less
• 3: No

Feelings (FLG) - Question identifier:FLG_Q350

For each of the following six questions, please indicate whether the statement describes your feelings, using the categories: yes, more or less, or no.
e. I miss having people around.

• 1: Yes
• 2: More or less
• 3: No

Feelings (FLG) - Question identifier:FLG_Q360

For each of the following six questions, please indicate whether the statement describes your feelings, using the categories: yes, more or less, or no.
f. I often feel rejected.

• 1: Yes
• 2: More or less
• 3: No

Emotion (EMO) - Question identifier:EMO_Q10

Would you describe yourself as being usually

• 1: happy and interested in life
• 2: somewhat happy
• 3: somewhat unhappy
• 4: unhappy with little interest in life
• 5: so unhappy that life is not worthwhile

Disability screening questions (DSQ) - Question identifier:DSQ_R01

The following questions are about difficulties you may have doing certain activities. Only difficulties or long-term conditions that have lasted or are expected to last for six months or more should be considered.

Disability screening questions (DSQ) - Question identifier:DSQ_Q01

Do you have any difficulty seeing?

• 1: No
• 2: Sometimes
• 3: Often
• 4: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q02

Do you wear glasses or contact lenses to improve your vision?

• 1: Yes
• 2: No
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q03

[With your glasses or contact lenses, which/Which] of the following best describes your ability to see?

• 1: No difficulty seeing
• 2: Some difficulty seeing
• 3: A lot of difficulty seeing
• 4: [You/You/He/She] are legally blind
• 5: [You/You/He/She] are blind
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q04

How often does this [difficulty seeing/seeing condition] limit your daily activities?

• 1: Never
• 2: Rarely
• 3: Sometimes
• 4: Often
• 5: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q05

Do you have any difficulty hearing?

• 1: No
• 2: Sometimes
• 3: Often
• 4: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q06

Do you use a hearing aid or cochlear implant?

• 1: Yes
• 2: No
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q07

[With your hearing aid or cochlear implant, which/Which] of the following best describes your ability to hear?

• 1: No difficulty hearing
• 2: Some difficulty hearing
• 3: A lot of difficulty hearing
• 4: [You/You/He/She] cannot hear at all
• 5: [You/You/He/She] are Deaf
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q08

How often does this [difficulty hearing/hearing condition] limit your daily activities?

• 1: Never
• 2: Rarely
• 3: Sometimes
• 4: Often
• 5: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q09

Do you have any difficulty walking, using stairs, using your hands or fingers or doing other physical activities?

• 1: No
• 2: Sometimes
• 3: Often
• 4: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_R10

The following questions are about your ability to move around, even when using an aid such as a cane.

Disability screening questions (DSQ) - Question identifier:DSQ_Q10

How much difficulty do you have walking on a flat surface for 15 minutes without resting?

• 1: No difficulty
• 2: Some difficulty
• 3: A lot of difficulty
• 4: [You/You/He/She] cannot do at all
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q11

How much difficulty do you have walking up or down a flight of stairs, about 12 steps without resting?

• 1: No difficulty
• 2: Some difficulty
• 3: A lot of difficulty
• 4: [You/You/He/She] cannot do at all
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q12

How often [does this difficulty walking/does this difficulty using stairs/do these difficulties] limit your daily activities?

• 1: Never
• 2: Rarely
• 3: Sometimes
• 4: Often
• 5: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q13

How much difficulty do you have bending down and picking up an object from the floor?

• 1: No difficulty
• 2: Some difficulty
• 3: A lot of difficulty
• 4: [You/You/He/She] cannot do at all
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q14

How much difficulty do you have reaching in any direction, for example, above your head?

• 1: No difficulty
• 2: Some difficulty
• 3: A lot of difficulty
• 4: [You/You/He/She] cannot do at all
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q15

How often [does this difficulty bending down and picking up an object/does this difficulty reaching/do these difficulties] limit your daily activities?

• 1: Never
• 2: Rarely
• 3: Sometimes
• 4: Often
• 5: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q16

How much difficulty do you have using your fingers to grasp small objects like a pencil or scissors?

• 1: No difficulty
• 2: Some difficulty
• 3: A lot of difficulty
• 4: [You/You/He/She] cannot do at all
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q17

How often does this difficulty using your fingers limit your daily activities?

• 1: Never
• 2: Rarely
• 3: Sometimes
• 4: Often
• 5: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_R18

The following questions are about pain due to a long-term condition that has lasted or is expected to last for six months or more.

Disability screening questions (DSQ) - Question identifier:DSQ_Q18

Do you have pain that is always present?

• 1: Yes
• 2: No
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q19

Do you [also/null] have periods of pain that reoccur from time to time?

• 1: Yes
• 2: No
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q20

How often does this pain limit your daily activities?

• 1: Never
• 2: Rarely
• 3: Sometimes
• 4: Often
• 5: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q21

When you are experiencing this pain, how much difficulty do you have with your daily activities?

• 1: No difficulty
• 2: Some difficulty
• 3: A lot of difficulty
• 4: [You/You/He/She] cannot do most activities
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_R22

Please answer only for difficulties or long-term conditions that have lasted or are expected to last for six months or more.

Disability screening questions (DSQ) - Question identifier:DSQ_Q22

Do you have any difficulty learning, remembering or concentrating?

• 1: No
• 2: Sometimes
• 3: Often
• 4: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q23

Do you think you have a condition that makes it difficult in general for you to learn? This may include learning disabilities such as dyslexia, hyperactivity, attention problems, etc.

• 1: Yes
• 2: No
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q24

Has a teacher, doctor or other health care professional ever said that you had a learning disability?

• 1: Yes
• 2: No
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q25

How often are your daily activities limited by this condition?

• 1: Never
• 2: Rarely
• 3: Sometimes
• 4: Often
• 5: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q26

How much difficulty do you have with your daily activities because of this condition?

• 1: No difficulty
• 2: Some difficulty
• 3: A lot of difficulty
• 4: [You/You/He/She] cannot do most activities
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q27

Has a doctor, psychologist or other health care professional ever said that you had a developmental disability or disorder? This may include Down syndrome, autism, Asperger syndrome, mental impairment due to lack of oxygen at birth, etc.

• 1: Yes
• 2: No
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q28

How often are your daily activities limited by this condition?

• 1: Never
• 2: Rarely
• 3: Sometimes
• 4: Often
• 5: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q29

How much difficulty do you have with your daily activities because of this condition?

• 1: No difficulty
• 2: Some difficulty
• 3: A lot of difficulty
• 4: [You/You/He/She] cannot do most activities
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q30

Do you have any ongoing memory problems or periods of confusion?

• 1: Yes
• 2: No
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q31

How often are your daily activities limited by this problem?

• 1: Never
• 2: Rarely
• 3: Sometimes
• 4: Often
• 5: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q32

How much difficulty do you have with your daily activities because of this problem?

• 1: No difficulty
• 2: Some difficulty
• 3: A lot of difficulty
• 4: [You/You/He/She] cannot do most activities
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_R33

Please remember that your answers will be kept strictly confidential.

Disability screening questions (DSQ) - Question identifier:DSQ_Q33

Do you have any emotional, psychological or mental health conditions?

• 1: No
• 2: Sometimes
• 3: Often
• 4: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q34

How often are your daily activities limited by this condition?

• 1: Never
• 2: Rarely
• 3: Sometimes
• 4: Often
• 5: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q35

When you are experiencing this condition, how much difficulty do you have with your daily activities?

• 1: No difficulty
• 2: Some difficulty
• 3: A lot of difficulty
• 4: [You/You/He/She] cannot do most activities
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q36

Do you have any other health problem or long-term condition that has lasted or is expected to last for six months or more?

• 1: Yes
• 2: No
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q37

How often does this health problem or long-term condition limit your daily activities?

• 1: Never
• 2: Rarely
• 3: Sometimes
• 4: Often
• 5: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_R38

The following questions are about pain due to a long-term condition that has lasted or is expected to last for six months or more.

Disability screening questions (DSQ) - Question identifier:DSQ_Q38

Do you have pain that is always present?

• 1: Yes
• 2: No
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q39

Do you [also/null] have periods of pain that reoccur from time to time?

• 1: Yes
• 2: No
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q40

How often does this pain limit your daily activities?

• 1: Never
• 2: Rarely
• 3: Sometimes
• 4: Often
• 5: Always
• 9: DK

Disability screening questions (DSQ) - Question identifier:DSQ_Q41

When you are experiencing this pain, how much difficulty do you have with your daily activities?

• 1: No difficulty
• 2: Some difficulty
• 3: A lot of difficulty
• 4: [You/You/He/She] cannot do most activities
• 9: DK

Long-term Health Conditions (CHC) - Question identifier:CHC_Q100

Do you have any long-term health conditions, or physical or mental disabilities[other than the one for which you have received help/]?

• 1: Yes
• 2: No

Long-term Health Conditions (CHC) - Question identifier:CHC_Q110

What is this condition?

• 01: Arthritis (e.g., rheumatoid arthritis, osteoarthritis, lupus or gout)
• 02: Osteoporosis
• 03: Cardiovascular disease (e.g., angina, heart attack, stroke and hypertension)
• 04: Kidney disease
• 05: Asthma
• 06: Chronic bronchitis, emphysema or chronic obstructive pulmonary disease (COPD)
• 07: Diabetes
• 08: Migraine
• 09: Back problems
• 10: Cancer
• 11: Mental illness (e.g., depression, bipolar disorder, mania or schizophrenia)
• 12: Alzheimer's disease or dementia
• 13: All other neurological diseases (e.g., Parkinson's disease, multiple sclerosis, spina bifida, cerebral palsy)
• 14: Urinary or bowel incontinence
• 15: Digestive disease (e.g., celiac disease, irritable bowel syndrome, stomach ulcers, Crohn's disease)
• 16: Fibromyalgia, chronic fatigue syndrome or multiple chemical sensitivities
• 17: Developmental disability or disorder
• 18: Injury resulting from an accident
• 19: Aging or frailty
• 20: Other

Immigration extended block (BPR) - Question identifier:BPR_Q01

In what country were you born?

Long Answer Length = 80

Immigration extended block (BPR) - Question identifier:BPR_Q02

In which province or territory were you born?

• 10: Newfoundland and Labrador
• 11: Prince Edward Island
• 12: Nova Scotia
• 13: New Brunswick
• 24: Quebec
• 35: Ontario
• 46: Manitoba
• 47: Saskatchewan
• 48: Alberta
• 59: British Columbia
• 60: Yukon
• 61: Northwest Territories
• 62: Nunavut

Immigration extended block (BPR) - Question identifier:BPR_Q15

In what year did you first come to Canada to live?

Min = 0; Max = 9999

Immigration extended block (BPR) - Question identifier:BPR_Q16

Are you now, or have you ever been a landed immigrant in Canada?

• 1: Yes
• 2: No

Immigration extended block (BPR) - Question identifier:BPR_Q17

In what year did you first become a landed immigrant in Canada?

Min = 0; Max = 9999

Immigration extended block (BPR) - Question identifier:BPR_Q18

Of what country are you a citizen?

Long Answer Length = 80

Population Group (PG) - Question identifier:PG_Q01

The following question collects information in accordance with the Employment Equity Act and its Regulations and Guidelines to support programs that promote equal opportunity for everyone to share in the social, cultural, and economic life of Canada.
Are you

• 01: White
• 02: South Asian (e.g., East Indian, Pakistani, Sri Lankan)
• 03: Chinese
• 04: Black
• 05: Filipino
• 06: Latin American
• 07: Arab
• 08: Southeast Asian (e.g., Vietnamese, Cambodian, Laotian, Thai)
• 09: West Asian (e.g., Iranian, Afghan)
• 10: Korean
• 11: Japanese
• 12: Other

Religion extended (REE) - Question identifier:REE_Q01B

What is your religion?
Specify this other religion

Long Answer Length = 80

Religion extended (REE) - Question identifier:REE_Q02

Not counting events such as weddings or funerals, during the past 12 months, how often did you participate in religious activities or attend religious services or meetings?

• 1: At least once a week
• 2: At least once a month
• 3: At least 3 times a year
• 4: Once or twice a year
• 5: Not at all

Religion extended (REE) - Question identifier:REE_Q03

In the past 12 months, how often did you engage in religious or spiritual activities on your own?

• 1: At least once a day
• 2: At least once a week
• 3: At least once a month
• 4: At least 3 times a year
• 5: Once or twice a year
• 6: Not at all

Importance of Religion (RLR) - Question identifier:RLR_Q110

How important are your religious or spiritual beliefs to the way you live your life?

• 1: Very important
• 2: Somewhat important
• 3: Not very important
• 4: Not important at all

Language Minimum (LAN) - Question identifier:LAN_Q01

Of English or French, which language(s) do you speak well enough to conduct a conversation?

• 1: English only
• 2: French only
• 3: Both English and French
• 4: Neither English nor French

Language Minimum (LAN) - Question identifier:LAN_R10

What language do you speak most often at home?

Language Minimum (LAN) - Question identifier:LAN_R15

What is the language that you first learned at home in childhood and still understand?

Exit questions (XQ) - Question identifier:XQ_R01

And finally, in order to prevent [you/your household] from being selected more than once for this survey, please list all [your telephone numbers/the telephone numbers in your household]:

Exit questions (XQ) - Question identifier:XQ_R01B

Telephone number

Exit questions (XQ) - Question identifier:XQ_R01C

Telephone type

Exit questions (XQ) - Question identifier:XQ_R01D

A. Telephone number 1

Exit questions (XQ) - Question identifier:XQ_R01E

B. Telephone number 2

Exit questions (XQ) - Question identifier:XQ_R01F

C. Telephone number 3

Exit questions (XQ) - Question identifier:XQ_R01G

D. Telephone number 4

Exit questions (XQ) - Question identifier:XQ_R01H

E. Telephone number 5

Exit questions (XQ) - Question identifier:XQ_R01I

F. Telephone number 6

Exit questions (XQ) - Question identifier:XQ_R01J

G. Telephone number 7

Exit questions (XQ) - Question identifier:XQ_R01K

H. Telephone number 8

Exit questions (XQ) - Question identifier:XQ_R01L

I. Telephone number 9

Record linkage statement (RLS) - Question identifier:RLS_Q01

To enhance the data from this survey and to reduce the reporting burden, Statistics Canada will combine the information you provide with information from the tax data of all members of your household. Statistics Canada may also combine the information you provide with other survey or administrative data sources.

• 1: Continue
• 2: Respondent does not want his/her responses combined with other sources
• 3: Other (e.g., respondent hung up, interview suspended / interrupted)

Record linkage statement (RLS) - Question identifier:RLS_Q02

To enhance the data from this survey and to reduce the reporting burden, Statistics Canada will combine the information you provide with information from the tax data of all members of ^FNAME ^LNAME's household. Statistics Canada may also combine the information you provide with other survey or administrative data sources.

• 1: Continue
• 2: Respondent does not want his/her responses combined with other sources
• 3: Other (e.g., respondent hung up, interview suspended / interrupted)

Submit module for Out-of-Scope (OOS) - Question identifier:OOS_R01

You indicated that ^CURR_TELEPHONE does not belong to anyone in the household. A Statistics Canada representative may contact you to collect more details.

If you are ready to submit the questionnaire, press the Submit button.

Submit module for Out-of-Scope (OOS) - Question identifier:OOS_R02

You indicated that ^CURR_TELEPHONE is not a private home or personal phone. A Statistics Canada representative may contact you to collect more details.

If you are ready to submit the questionnaire, press the Submit button.