Call for Collaboration - Living with a Life-limiting Illness: Access to Care and Related Experiences

Detailed information for 2024

The purpose of this Call for Collaboration is to ask for support to help Statistics Canada promote a new national study on palliative care entitled Living with a Life-limiting Illness: Access to Care and Related Experiences (LLLI-ACRE), which will take place in the fall of 2024.

Data release - Data from the Call for Collaboration will not be released.

• Questionnaire(s) and reporting guide(s)
• Description
• Data sources and methodology

Description

This is a consultative-type initiative and is not being collected under the Statistics Act.

Institutions and organizations with clients who are living with a life-limiting illness or their unpaid caregivers are asked to complete this Call for Collaboration and indicate their willingness to help promote the new study on palliative care, LLLI-ACRE.

Participating institutions and organizations are asked to:
- Describe their organization's main activity,
- Indicate how they are willing to help promote the new study on palliative care, LLLI-ACRE, which will take place in the fall of 2024,
- Provide the number and type of clients the organization serves,
- Provide contact information for the provision of promotional materials.

Help publicizing the study is critical to its success as it will be an open portal, with no way to contact potential participants directly.

Institutions and organizations that agree to help will be sent information and promotional materials about the new study that can be provided to their clientele when the portal to the questionnaire is opened in October 2024.

The links included with the promotional material will take participants directly to the study's portal where they will be able to complete the questionnaire for LLLI-ACRE.

Collection period: June 2024 to January 2025

Data sources and methodology

Target population

Organizations that serve clientele living with a life-limiting illness or their unpaid caregivers. These may include hospitals, hospices, disease treatment centres, long-term care facilities, community organizations, palliative care organizations and more.

Instrument design

The content and questionnaire for the Call for Collaboration were prepared and designed with the assistance of key partners and experts.

Data are collected directly from organizations through an electronic questionnaire (EQ). Prior to collection, the questionnaire underwent extensive testing to ensure it was working as designed.

Sampling

This methodology type does not apply.

Data sources

Data collection for this reference period: 2024-06-18 to 2025-01-31

Participation in this data collection initiative is voluntary.

Data are collected directly from organizations or institutions with potential links to palliative care, through an online questionnaire. Initial contact is made by an email invitation and links to additional information about the Call for Collaboration are provided. Three reminder e-mails are then sent to organizations, once a month after the initial invite. Participants have the choice to complete the questionnaire in English or French. The average time to complete the questionnaire is estimated to be at 5 minutes.

View the Questionnaire(s) and reporting guide(s) .