Statistics Canada
Symbol of the Government of Canada

Survey on Living with Chronic Diseases in Canada

Arthritis Component

2009 Questionnaire

Survey Introduction (XINT)
General health (XGEN)
Diagnosis and family history (XDHA)
Symptoms and severity (XSSA)
Restriction of activities (XRAA)
Use of Assistive Devices (XADA)
Restriction of work-related activities (XRWA)
Medication use (XMEA)
Health care utilization (XHUA)
Clinical recommendations (XCLA)
Self-management (XSMA)
Support and well-being (XSWA)
Information received (XINA)
Administration (XADM)

Survey Introduction (XINT)

XINT_BEG

Standard block
External variables required:
FNAME: first name of specific respondent from sample file
LNAME: last name of specific respondent from sample file
DOXINT: do block flag, from the sample file
Screen display:
Display on header bar FNAME and LNAME separated by a space

XINT_R01

This survey is conducted under the authority of the Statistics Act in collaboration with the Public Health Agency of Canada. The purpose of this survey is to collect information on Canadians with chronic health conditions. Data from the survey will help inform public health programs and health professionals, with the aim of improving health outcomes for Canadians with chronic conditions. You may remember recently completing the Canadian Community Health Survey - this is a follow-up to that survey.
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XINT_R02

Your answers will be kept strictly confidential and will only be used for statistical purposes. While participation is voluntary, your assistance is essential if the results are to be accurate.
(Registration #: STC/HLT-082-75437)

INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XINT_END

General health (XGEN)

XGEN_BEG

Content block
External variable required:
FNAME: first name of specific respondent from sample file
LNAME: last name of specific respondent from sample file
SEX: sex of respondent (1=male, 2=female) from sample file
DOXGEN: do block flag, from the sample file
Screen display:
Display on header bar FNAME and LNAME separated by a space

XGEN_C01

If DOXGEN = 1, go to XGEN_R01.
Otherwise, go to XGEN_END.

XGEN_R01

I would like to start with some general background questions.
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XGEN_Q01

In general, would you say your health is:
INTERVIEWER : Read categories to respondent.
1 … excellent?
2 … very good?
3 … good?
4 … fair?
5 … poor?
DK, RF

XGEN_Q02

Compared to one year ago, how would you say your health is now? Is it:
INTERVIEWER : Read categories to respondent.
1 … much better now than 1 year ago?
2 … somewhat better now (than 1 year ago)?
3 … about the same as 1 year ago?
4 … somewhat worse now (than 1 year ago)?
5 … much worse now (than 1 year ago)?
DK, RF

XGEN_Q03

How satisfied are you with your life in general?
INTERVIEWER : Read categories to respondent.
1 Very satisfied
2 Satisfied
3 Neither satisfied nor dissatisfied
4 Dissatisfied
5 Very dissatisfied
DK, RF

XGEN_Q04

In general, would you say your mental health is:
INTERVIEWER : Read categories to respondent.
1 … excellent?
2 … very good?
3 … good?
4 … fair?
5 … poor?
DK, RF

XGEN_Q05

Thinking about the amount of stress in your life, would you say that most days are:
INTERVIEWER : Read categories to respondent.
1 … not at all stressful?
2 … not very stressful?
3 … a bit stressful?
4 … quite a bit stressful?
5 … extremely stressful?
DK, RF

XGEN_END

Diagnosis and family history (XDHA)

XDHA_BEG

Content block
External variables required:
FNAME: first name of specific respondent from sample file
LNAME: last name of specific respondent from sample file
CURRAGE: current age of respondent from SRC block
DOXDHA: do block flag, from the sample file
Screen display:
Display on header bar FNAME and LNAME separated by a space

XDHA_C01

If DOXDHA = 1, go to XDHA_R01.
Otherwise, go to XDHA_END.

XDHA_R01

Now I would like to ask some questions about arthritis.
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XDHA_Q01

To begin, do you have arthritis, excluding fibromyalgia, that has been diagnosed by a health professional?
1 Yes
2 No (Go to XDHA_R08)
(DK, RF are not allowed)

XDHA_Q02

Do you know the kind of arthritis you have?
1 Yes
2 No (Go to XDHA_Q04)
DK, RF (Go to XDHA_Q04)

XDHA_Q03

What kind of arthritis do you have?
INTERVIEWER : Mark all that apply.
01 Osteoarthritis
02 Rheumatoid arthritis
03 Ankylosing spondylitis
04 Gout
05 Lupus (systemic lupus erythematosus)
06 Polymyalgia rheumatica
07 Polymyositis
08 Psoriatic arthritis
09 Reiter’s syndrome
10 Scleroderma/systemic sclerosis
11 Sjogren's syndrome
12 Vasculitis
13 Fibromyalgia
14 Other - Specify (Go to XDHA_S03)
DK, RF

XDHA_S03

INTERVIEWER :Specify.
(80 spaces)
(DK, RF are not allowed)

XDHA_E03

Inconsistent answers have been entered. The respondent has fibromyalgia and no other form of arthritis, but previously reported that he/she had arthritis excluding fibromyalgia. Please confirm.

Note :

Trigger soft edit if XDHA_Q01 = 1 and (XDHA_Q03 = 13 and no other response selected for XDHA_Q03).

XDHA_C03

If XDHA_Q03 = 13 and no other response selected for XDHA_Q03, go to XDHA_R08.
Otherwise, go to XDHA_Q04.

XDHA_Q04

How old were you when you were first diagnosed with arthritis?
INTERVIEWER : Maximum is ^CURRAGE. If necessary, ask (Do you know the approximate age in years?).
Enter the age when a doctor or other health professional first made the diagnosis of arthritis. Encourage the respondent to give their best estimate - try not to accept ‘Don’t Know’ as a response as this is important information. Probe if necessary.
(MIN: 0) (MAX: 130)
DK, RF

XDHA_E04A

An unusual value has been entered. Please confirm.

Note :

Trigger soft edit if XDHA_Q04 < 10.

XDHA_E04B

The age the respondent was first diagnosed with arthritis is invalid. Please return and correct.

Note :

Trigger hard edit if XDHA_Q04 > CURRAGE.

XDHA_Q05

Have you ever experienced joint symptoms of pain, aching or stiffness, related to your arthritis?
INTERVIEWER : Try not to accept "Don’t Know" as a response as this is important information. Probe if necessary.
1 Yes
2 No (Go to XDHA_Q07)
DK, RF (Go to XDHA_Q07)

XDHA_Q06

How old were you when you first started experiencing joint symptoms (of pain, aching or stiffness)?
INTERVIEWER : Maximum is ^CURRAGE. If necessary, ask (Do you know the approximate age in years?).
Enter the age when the respondent first started experiencing symptoms related to arthritis, regardless of whether they had received a diagnosis at this point from a doctor or other health professional. Encourage the respondent to give their best estimate - try not to accept ‘Don’t Know’ as a response as this is important information.
(MIN: 0) (MAX: 130)
DK, RF

XDHA_E06A

An unusual value has been entered. Please confirm.

Note :

Trigger soft edit if XDHA_Q06 < 10.

XDHA_E06B

The age the respondent first started experiencing joint symptoms (of pain, aching or stiffness) is invalid. Please return and correct.

Note :

Trigger hard edit if XDHA_Q06 > CURRAGE.

XDHA_Q07

Do you have a blood relative, that is, a parent, sister, brother, child, grandparent, aunt or uncle that you are related to by birth, who has ever been diagnosed with arthritis, or who has chronic joint symptoms?
INTERVIEWER : Include relatives who are living or deceased.
1 Yes
2 No (Go to XDHA_END)
DK, RF (Go to XDHA_END)

XDHA_Q08

What is this person’s relationship to you?
INTERVIEWER : Mark all that apply.
01 Mother
02 Father
03 Sister
04 Brother
05 Daughter
06 Son
07 Grandmother
08 Grandfather
09 Aunt
10 Uncle
11 Other
DK, RF
Go to XDHA_END

XDHA_R08

You have said that you do not have arthritis (not including fibromyalgia). Since this survey applies only to people with arthritis excluding fibromyalgia, you are not eligible to participate in today's survey. Thank you for your time.
Go to XDHA_D08

XDHA_D08

If XDHA_Q01 = 2 OR XDHA_Q03 = 13 (and no other response), DOXSSA = 2.
If XDHA_Q01 = 2 OR XDHA_Q03 = 13 (and no other response), DOXRAA = 2.
If XDHA_Q01 = 2 OR XDHA_Q03 = 13 (and no other response), DOXADA = 2.
If XDHA_Q01 = 2 OR XDHA_Q03 = 13 (and no other response), DOXRWA = 2.
If XDHA_Q01 = 2 OR XDHA_Q03 = 13 (and no other response), DOXMEA = 2.
If XDHA_Q01 = 2 OR XDHA_Q03 = 13 (and no other response), DOXHUA = 2.
If XDHA_Q01 = 2 OR XDHA_Q03 = 13 (and no other response), DOXCLA = 2.
If XDHA_Q01 = 2 OR XDHA_Q03 = 13 (and no other response), DOXSMA = 2.
If XDHA_Q01 = 2 OR XDHA_Q03 = 13 (and no other response), DOXINA = 2.
If XDHA_Q01 = 2 OR XDHA_Q03 = 13 (and no other response), DOXSWA = 2.
If XDHA_Q01 = 2 OR XDHA_Q03 = 13 (and no other response), DOXADM = 2.

Note :

This derived variable is to set the "DOMODULE" condition to "2" for all proceeding modules if XDHA_Q01 = 2. Otherwise the "DOMODULE" condition for each module stays as is.

XDHA_C08

If XDHA_Q01 = 2, autocode final code to 40 (outside of sample).

XDHA_END

Symptoms and severity (XSSA)

XSSA_BEG

Content block
External variables required:
FNAME: first name of specific respondent from sample file
LNAME: last name of specific respondent from sample file
DOXSSA: do block flag, from the sample file
XDHA_Q05: from XDHA module
Screen display:
Display on header bar FNAME and LNAME separated by a space

XSSA_C01

If DOXSSA = 1, go to XSSA_C02.
Otherwise, go to XSSA_END.

XSSA_C02

If XDHA_Q05 = 2, go to XSSA_R04.
Otherwise, go to XSSA_R01.

XSSA_R01

Now some questions about the frequency and severity of your joint pain.
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XSSA_Q01

In the past month, how often have you experienced joint pain?
INTERVIEWER : Read categories to respondent.
1 Always
2 Often
3 Sometimes
4 Rarely
5 Never (Go to XSSA_R04)
DK
RF(Go to XSSA_R04)

XSSA_Q02

Please tell me what number best describes, on average, how bad your joint pain was during the past month. Answer with a number between 1 and 10; 1 means "little pain", while 10 means "pain as bad as it could be". On average, in the past month, how bad was your joint pain?
01 Little pain
02 |
03 |
04 |
05 |
06 |
07 |
08 |
09 V
10 Pain as bad as it could be
DK, RF

XSSA_Q03

In the past month, which joints have been painful?
INTERVIEWER : Read categories to respondent. Mark all that apply.
01 Neck
02 Right shoulder
03 Left shoulder
04 Right elbow
05 Left elbow
06 Right wrist
07 Left wrist
08 Right hand/fingers/thumb
09 Left hand/fingers/thumb
10 Back
11 Right hip
12 Left hip
13 Right knee
14 Left knee
15 Right ankle
16 Left ankle
17 Right foot/toes
18 Left foot/toes
19 Other
DK, RF

XSSA_R04

Now some questions about fatigue.
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XSSA_Q04

In the past month, how often have you experienced fatigue?
INTERVIEWER : Read categories to respondent.
1 Always
2 Often
3 Sometimes
4 Rarely
5 Never (Go to XSSA_END)
DK
RF (Go to XSSA_END)

XSSA_Q05

Please tell me what number best describes, on average, how bad your fatigue was during the past month. Answer with a number between 1 and 10; 1 means "little fatigue", while 10 means "fatigue as bad as it could be". On average, in the past month, how bad was your fatigue?
01 Little fatigue
02 |
03 |
04 |
05 |
06 |
07 |
08 |
09 V
10 Fatigue as bad as it could be
DK, RF

XSSA_END

Restriction of activities (XRAA)

XRAA_BEG

Content block
External variables required:
FNAME: first name of respondent from household block
LNAME: last name of respondent from household block
DOXRAA: do block flag, from the sample file
Screen display:
Display on header bar FNAME and LNAME separated by a space

XRAA_C01

If DOXRAA = 1, go to XRAA_R01.
Otherwise, go to XRAA_END.

XRAA_R01

The next few questions deal with any limitations in your usual activities caused by your arthritis.
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XRAA_Q01

In the past month, how much did your arthritis limit you:
… in getting a good night’s sleep?
INTERVIEWER : Read categories to respondent.
1 A lot
2 A little
3 Not at all
DK
RF (Go to XRAA_END)

XRAA_Q02

In the past month, how much did your arthritis limit you:
… in bathing or dressing yourself?
INTERVIEWER : Read categories to respondent.
1 A lot
2 A little
3 Not at all
DK, RF

XRAA_Q03

(In the past month, how much did your arthritis limit you:)
… in getting around the house?
1 A lot
2 A little
3 Not at all
DK, RF

XRAA_Q04

(In the past month, how much did your arthritis limit you:)
… in doing household chores?
1 A lot
2 A little
3 Not at all
DK, RF

XRAA_Q05

(In the past month, how much did your arthritis limit you:)
… in running errands or shopping?
1 A lot
2 A little
3 Not at all
DK, RF

XRAA_Q06

(In the past month, how much did your arthritis limit you:)
… in activities such as recreation, leisure, hobbies or social activities?
1 A lot
2 A little
3 Not at all
DK, RF

XRAA_Q07

Overall, how much does your arthritis affect your life?
INTERVIEWER : Read categories to respondent.
1 Not at all
2 A little bit
3 Moderately
4 Quite a bit
5 Extremely
DK, RF

XRAA_END

Use of Assistive Devices (XADA)

XADA_BEG

Content block
External variables required:
FNAME: first name of respondent from sample file
LNAME: last name of respondent from sample file
DOXADA: do block flag, from the sample file
Screen display:
Display on header bar FNAME and LNAME separated by a space

XADA_C01

If DOXADA = 1, go to XADA_R01.
Otherwise, go to XADA_END.

XADA_R01

The next few questions are about assistive devices you may use to help with your usual activities. By assistive device, we mean any device or tool that is designed or adapted to help a person perform a particular task or activity.
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XADA_Q01A

Do you currently use any of the following assistive devices to help with your usual activities:
… a device for walking or getting around, such as a cane, walker, crutches, or wheelchair?
1 Yes
2 No (Go to XADA_Q02A)
DK, RF (Go to XADA_Q02A)

XADA_Q01B

Do you use this device to help with problems caused by your arthritis?
1 Yes
2 No
DK, RF

XADA_Q02A

Do you currently use:
… a device for dressing, such as a button hook, zipper pull, or long-handled shoe horn?
1 Yes
2 No (Go to XADA_Q03A)
DK, RF (Go to XADA_Q03A)

XADA_Q02B

Do you use this device to help with problems caused by your arthritis?
1 Yes
2 No
DK, RF

XADA_Q03A

(Do you currently use:)
… an orthotic, such as a wrist or hand splint, or a knee or neck brace?
1 Yes
2 No (Go to XADA_Q04A)
DK, RF (Go to XADA_Q04A)

XADA_Q03B

Do you use this device to help with problems caused by your arthritis?
1 Yes
2 No
DK, RF

XADA_Q04A

(Do you currently use:)
… a built up or special tool, such as a jar or bottle opener or a reacher?
1 Yes
2 No (Go to XADA_Q05A)
DK, RF (Go to XADA_Q05A)

XADA_Q04B

Do you use this device to help with problems caused by your arthritis?
1 Yes
2 No
DK, RF

XADA_Q05A

(Do you currently use:)
…a built up or special chair, for example, a chair with a raised cushion or a power lift-chair?
1 Yes
2 No (Go to XADA_Q06A)
DK, RF (Go to XADA_Q06A)

XADA_Q05B

Do you use this device to help with problems caused by your arthritis?
1 Yes
2 No
DK, RF

XADA_Q06A

(Do you currently use:)
…a safety device, such as a bathtub grab bar, or a hand rail?
1 Yes
2 No (Go to XADA_Q07A)
DK, RF (Go to XADA_Q07A)

XADA_Q06B

Do you use this device to help with problems caused by your arthritis?
1 Yes
2 No
DK, RF

XADA_Q07A

Do you currently use:
…any other assistive device to help with your usual activities?
1 Yes - Specify (Go to XADA_S07A)
2 No
DK, RF
Go to XADA_END

XADA_S07A

INTERVIEWER : Specify. Enter only one device.
(80 spaces)
(DK, RF are not allowed)

XADA_Q07B

Do you use this device to help with problems caused by your arthritis?
1 Yes
2 No
DK, RF

XADA_END

Restriction of work-related activities (XRWA)

XRWA_BEG

Content block
External variables required:
FNAME: first name of respondent from sample file
LNAME: first name of respondent from sample file
DOXRWA: do block flag, from the sample file
XDHA_Q04: from XDHA module
XDHA_Q05: from XDHA module
XDHA_Q06: from XDHA module
Screen display:
Display on header bar FNAME and LNAME separated by a space.

XRWA_C01

If DOXRWA = 1, go to XRWA_R01.
Otherwise, go to XRWA_END.

XRWA_R01

The next questions concern your work activities.
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XRWA_Q01

Are you currently working for pay at a job or business?
1 Yes (Go to XRWA_D04)
2 No
DK
RF (Go to XRWA_R08)

XRWA_Q02

Have you ever worked for pay at a job or business?
1 Yes
2 No (Go to XRWA_R08)
DK, RF (Go to XRWA_R08)

XRWA_D03

If (XDHA_Q05 = 2, DK, RF) or ((XDHA_Q04 = RESPONSE and XDHA_Q06 = RESPONSE) AND (XDHA_Q04 < XDHA_Q06)), DT_DIAG = "being diagnosed with arthritis".
If (XDHA_Q04 = RESPONSE and XDHA_Q06 = RESPONSE) AND XDHA_Q04 > XDHA_Q06, DT_DIAG = "you began experiencing symptoms related to your arthritis".
Otherwise, DT_DIAG = "being diagnosed with arthritis".

XRWA_Q03

At any time since ^DT_DIAG, have you worked for pay at a job or business?
1 Yes
2 No (Go to XRWA_R08)
DK, RF(Go to XRWA_R08)

XRWA_D04

If XRWA_Q01 = 1, DT_DODID = "do".
Otherwise, DT_DODID = "did".
If XRWA_Q01 = 1, DT_WORK = "work".
Otherwise, DT_WORK = "worked".
If XRWA_Q01 = 1, DT_CARRY = "carry".
Otherwise, DT_CARRY = "carried".

XRWA_Q04

Because of your arthritis, did you ever:
… change the number of hours you ^DT_WORK?
1 Yes
2 No
DK, RF

XRWA_Q05

Because of your arthritis, did you ever:
… change the type of work you ^DT_DODID?
1 Yes
2 No
DK, RF

XRWA_Q06

Because of your arthritis, did you ever:
… change the way in which you ^DT_CARRY out your tasks at work?
1 Yes
2 No
DK, RF

XRWA_Q07

Because of your arthritis, did you ever:
… stop work altogether?
1 Yes
2 No
DK, RF

XRWA_R08

Now, some questions about any volunteer activities that you may do without pay on behalf of a group or an organization. This includes any unpaid help you may provide to schools, religious organizations, sports or community associations.
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XRWA_Q08

Are you currently doing any volunteer work, for example organizing events, fundraising, or helping out with office work?
1 Yes (Go to XRWA_D11)
2 No
DK, RF

XRWA_Q09

Have you ever done any volunteer work?
1 Yes
2 No (Go to XRWA_END)
DK, RF (Go to XRWA_END)

XRWA_D10

If (XDHA_Q05 = 2, DK, RF) or ((XDHA_Q04 = RESPONSE and XDHA_Q06 = RESPONSE) AND (XDHA_Q04 < XDHA_Q06)), DT_DIAGN = "being diagnosed with arthritis".
If (XDHA_Q04 = RESPONSE and XDHA_Q06 = RESPONSE) AND (XDHA_Q04 > XDHA_Q06), DT_DIAGN = "you began experiencing symptoms related to your arthritis".
Otherwise, DT_DIAGN = "being diagnosed with arthritis".

XRWA_Q10

At any time since ^DT_DIAGN, have you done any volunteer work?
1 Yes
2 No (Go to XRWA_END)
DK, RF (Go to XRWA_END)

XRWA_D11

If XRWA_Q08 = 1, DT_TODO = "do".
Otherwise, DT_TODO = "did".
If XRWA_Q08 = 1, DT_TOCARRY = "carry".
Otherwise, DT_TOCARRY = "carried".

XRWA_Q11

Because of your arthritis, did you ever:
… change the number of hours or the type of volunteer work you ^DT_TODO, or the way in which you ^DT_TOCARRY out your tasks at your volunteer work?
1 Yes
2 No
DK, RF

XRWA_Q12

Because of your arthritis, did you ever:
… stop doing volunteer work altogether?
1 Yes
2 No
DK, RF

XRWA_END

Medication use (XMEA)

XMEA_BEG

Content block
External variables required:
FNAME: first name of respondent from sample file
LNAME: last name of respondent from sample file
DOXMEA: do block flag, from the sample file
Screen display:
Display on header bar FNAME and LNAME separated by a space

XMEA_C01

If DOXMEA = 1, go to XMEA_R01.
Otherwise, go to XMEA_END.

XMEA_R01

Now I’d like to ask a few questions about your use of medications for your arthritis. We are interested in your use of both prescription and non-prescription medications.
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XMEA_Q01

In the past month, did you take:
… prescription medications for your arthritis?
1 Yes
2 No
DK
RF (Go to XMEA_END)

XMEA_Q02

In the past month, did you take:
… non-prescription medications (that is over-the-counter products) such as pills, rubs or creams, excluding natural health products, for your arthritis?
1 Yes
2 No
DK, RF

XMEA_Q03

In the past month, did you take:
… natural health products, that is vitamin, mineral or herbal supplements or other natural treatments for your arthritis?
1 Yes
2 No
DK, RF

XMEA_END

Health care utilization (XHUA)

XHUA_BEG

Content block
External variables required:
FNAME: first name of respondent from the sample file
LNAME: last name of respondent from the sample file
DOXHUA: do block flag, from the sample file
Screen display:
Display on header bar FNAME and LNAME separated by a space

XHUA_C01

If DOXHUA = 1, go to XHUA_R01.
Otherwise, go to XHUA_END.

XHUA_R01

Now I’d like to ask about your contacts with various health professionals about your arthritis during the past 12 months.
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XHUA_Q01

In the past 12 months, have you seen, or talked to any of the following health professionals about your arthritis:
…a family doctor or general practitioner?
INTERVIEWER : Include both face-to-face and telephone contacts.
1 Yes
2 No
DK
RF (Go to XHUA_END)

XHUA_Q02

In the past 12 months, have you seen, or talked to:
…an orthopaedic surgeon about your arthritis?
INTERVIEWER : Include both face-to-face and telephone contacts.
1 Yes
2 Non
DK, RF

XHUA_Q03

(In the past 12 months, have you seen, or talked to:)
…a rheumatologist about your arthritis?
INTERVIEWER : Include both face-to-face and telephone contacts.
1 Yes
2 No
DK, RF

XHUA_Q04

(In the past 12 months, have you seen, or talked to:)
…a general internist about your arthritis?
INTERVIEWER : Include both face-to-face and telephone contacts.
1 Yes
2 No
DK, RF

XHUA_Q05

In the past 12 months, have you seen, or talked to:
…a pharmacist about your arthritis?
INTERVIEWER : Include both face-to-face and telephone contacts.
1 Yes
2 No
DK, RF

XHUA_Q06

(In the past 12 months, have you seen, or talked to:)
…a physiotherapist or occupational therapist about your arthritis?
INTERVIEWER : Include both face-to-face and telephone contacts.
1 Yes
2 No
DK, RF

XHUA_Q07

(In the past 12 months, have you seen, or talked to:)
…a mental health professional (such as a psychiatrist, psychologist, social worker or counsellor) about your arthritis?
INTERVIEWER : Include both face-to-face and telephone contacts.
1 Yes
2 No
DK, RF

XHUA_Q08

(In the past 12 months, have you seen, or talked to:)
… a complementary or alternative health care practitioner such as a massage therapist or an osteopath about your arthritis?
INTERVIEWER : Include both face-to-face and telephone contacts.
1 Yes
2 No
DK, RF

XHUA_Q09

In the past 12 months, have you seen, or talked to:
…any other health professional about your arthritis?
INTERVIEWER : Include both face-to-face and telephone contacts.
1 Yes - Specify (Go to XHUA_S09)
2 No
DK, RF
Go to XHUA_END

XHUA_S09

INTERVIEWER :Specify.
(80 spaces)
(DK, RF are not allowed)

XHUA_END

Clinical recommendations (XCLA)

XCLA_BEG

Content block
External variables required:
DOXCLA: do block flag, from the sample file
FNAME: first name of specific respondent from sample file
LNAME: last name of specific respondent from sample file
Screen display:
Display on header bar FNAME and LNAME separated by a space

XCLA_C01

If DOXCLA = 1, go to XCLA_R01.
Otherwise, go to XCLA_END.

XCLA_R01

The next questions are about things that a doctor or other health professional may have suggested to help you manage your arthritis. By manage, we mean things that may help you cope with your arthritis, improve any arthritis symptoms you may have, or keep further problems from developing.
You may feel that some of these questions do not apply to you, but it is important that we ask the same questions of everyone.

INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XCLA_Q01

Has a doctor or other health professional ever suggested:
…taking a course or class to teach you how to manage any problems caused by your arthritis?
1 Yes
2 No
DK
RF (Go to XCLA_END)

XCLA_Q02

Has a doctor or other health professional ever suggested:
…participating in physical activity or exercise to help you manage your arthritis?
1 Yes
2 No
DK, RF

XCLA_Q03

(Has a doctor or other health professional ever suggested:)
…controlling or losing weight to help you manage your arthritis?
1 Yes
2 No
DK, RF

XCLA_Q04

(Has a doctor or other health professional ever suggested:)
…using an assistive device or aid to help you manage your arthritis?
1 Yes
2 No
DK, RF

XCLA_Q05

Has a doctor or other health professional ever suggested:
…seeing or talking to a mental health professional (such as a psychiatrist, psychologist, social worker or counsellor) to help you manage your arthritis?
1 Yes
2 No
DK, RF

XCLA_END

Self-management (XSMA)

XSMA_BEG

Content block
External variables required:
FNAME: first name of respondent from sample file
LNAME: last name of respondent from sample file
DOXSMA: do block flag, from the sample file
Screen display:
Display on header bar FNAME and LNAME separated by a space

XSMA_C01

If DOXSMA=1, go to XSMA_R01.
Otherwise, go to XSMA_END.

XSMA_R01

The next questions are about things that you may do to help manage your arthritis. By manage, we mean things that may help you cope with your arthritis, improve any arthritis symptoms you may have, or keep further problems from developing.
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XSMA_Q01

Have you ever taken a course or class to teach you how to manage problems related to your arthritis?
1 Yes
2 No
DK
RF (Go to XSMA_END)

XSMA_Q02

Do you currently exercise or participate in physical activities to help manage problems related to your arthritis?
1 Yes (Go to XSMA_Q04)
2 No
DK, RF (Go to XSMA_Q04)

XSMA_Q03

What are the reasons that you are not exercising or participating in physical activities to help manage your arthritis?
INTERVIEWER : Mark all that apply.
01 Lack of will power / self-discipline
02 Does not like to exercise
03 Time constraints (too busy, family responsibilities, work schedule, etc.)
04 Already doing physical activities or exercise for other reasons
05 Arthritis symptoms make it hard to exercise
06 Physical condition or a health problem
07 Too costly / financial constraints
08 Not available in area
09 Taking medication to manage arthritis or joint symptoms
10 Does not think that exercise is important
11 Does not know that exercise is safe / recommended
12 Other
13 No reason for not exercising
DK, RF

XSMA_Q04

Are you currently trying to control your weight or lose weight to help manage your arthritis?
1 Yes (Go to XSMA_Q06)
2 No
DK, RF(Go to XSMA_Q06)

XSMA_Q05

What are the reasons that you are not trying to control your weight or lose weight to help manage your arthritis?
INTERVIEWER : Mark all that apply.
01 Does not need to control / lose weight – already a healthy weight
02 Lack of will power / self-discipline
03 Does not want to control / lose weight
04 Tried to control / lose weight - didn’t work
05 Time constraints (too busy, family responsibilities, work schedule, etc.)
06 Already controlling / losing weight for other reasons
07 Disability or a health problem other than arthritis makes it hard to control / lose weight
08 Too costly / financial constraints
09 Taking medication to manage arthritis or joint symptoms
10 Does not think that weight control / weight loss is important
11 Does not know that weight control / weight loss is safe or recommended
12 Other
13 No reason for not trying to control / lose weight
DK, RF

XSMA_Q06

In the past 12 months, have you used any community-based facilities, services or programs such as fitness facilities, the Arthritis Society self-management program, or telephone information or support lines, to help manage your arthritis?
1 Yes
2 No (Go to XSMA_END)
DK, RF (Go to XSMA_END)

XSMA_Q07

What community-based facilities, services or programs have you used?
INTERVIEWER : Mark all that apply.
1 Fitness facility
2 Pool
3 Land-based exercise programs such as yoga, pilates, weight-training
4 Water-based exercise programs
5 Weight loss programs or a dietitian
6 Arthritis Society self-management program
7 Support groups
8 Telephone information or support lines
9 Other
DK, RF

XSMA_END

Support and well-being (XSWA)

XSWA_BEG

Content block
External variables required:
DOXSWA: do block flag, from the sample file
FNAME: first name of specific respondent from sample file
LNAME: last name of specific respondent from sample file
Screen display:
Display on header bar FNAME and LNAME separated by a space

XSWA_C01

If DOXSWA=1, go to XSWA_R01.
Otherwise, go to XSWA_END.

XSWA_R01

The next few questions are about support and emotional well-being.
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XSWA_Q01

Are your family and friends supportive when it comes to helping you manage problems related to your arthritis if you need it?
1 Yes
2 No
3 Not applicable
DK
RF (Go to XSWA_END)

XSWA_Q02

Was there ever a time when you felt that you needed help for your emotions, stress, or your mental health, in order to manage your arthritis?
1 Yes
2 No
DK, RF

XSWA_END

Information received (XINA)

XINA_BEG

Content block
External variables required:
DOXINA: do block flag, from the sample file.
FNAME: first name of specific respondent from sample file
LNAME: last name of specific respondent from sample file
SEX: Sex of respondent from the sample file
Screen display:
Display on header bar FNAME and LNAME separated by a space.

XINA_C01

If DOXINA = 1, go to XINA_R01.
Otherwise, go to XINA_END.

XINA_R01

The next few questions are about information you may have received to help you manage your arthritis. (By manage, we mean things that may help you cope with your arthritis, improve any arthritis symptoms you may have, or keep further problems from developing.)
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XINA_Q01

Have you ever received information on any of the following topics:
… the type of arthritis you have?
1 Yes
2 No
DK
RF (Go to XINA_END)

XINA_Q02

Have you ever received information on:
… how to protect your joints, for example, by using orthotics such as splints or braces or by using other assistive devices?
1 Yes
2 No
DK, RF

XINA_Q03

Have you ever received information on:
… energy conservation techniques, for example, how to manage fatigue by balancing activities and rest, or by developing good sleep habits?
1 Yes
2 No
DK, RF

XINA_Q04

(Have you ever received information on:) the correct use of prescription arthritis medication?
INTERVIEWER : Include any prescription medications, including over-the-counter medications if they were prescribed by a doctor or health professional.
1 Yes
2 No
DK, RF

XINA_Q05

(Have you ever received information on:)
… the emotional impact of having arthritis, for example, how to deal with your emotions or stress?
1 Yes
2 No
DK, RF

XINA_Q06

(Have you ever received information on:)
…where to receive support to help you cope with your arthritis, for example, support groups or self-management programs?
1 Yes
2 No
DK, RF

XINA_Q07

(Have you ever received information on:)
… where to find additional information to help you manage your arthritis?
1 Yes
2 No
DK, RF

XINA_Q08

Overall, do you feel that you have enough information to help you manage your arthritis?
1 Yes
2 No
DK, RF

XINA_END

Administration (XADM)

XADM_BEG

Content block
External variables required:
FNAME: first name of respondent from the sample file
LNAME: last name of respondent from the sample file
DOXADM: do block flag, from the sample file
SMPLPROVE: province from the sample file
PROVE: province from SRC block
Screen display:
Display on header bar FNAME and LNAME separated by a space

XADM_C01

If DOXADM = 1, go to XADM_D01.
Otherwise, go to XADM_END.

XADM_D01

If SMPLPROVE = 24, QUEBECHNE = "Statistics Canada and the "Institut de la Statistique du Québec".
Otherwise, QUEBECHNE = "Statistics Canada and your provincial ministry of health“

XADM_R01A

In 2008, you responded to the Canadian Community Health Survey. At that time, you gave permission for ^QUEBECHNE to link information from that survey to your health services information. You also gave us your provincial health number to assist in linking this information.
INTERVIEWER : Your health services information includes your past and continuing use of health services, such as visits to hospitals, clinics and doctors' offices.
Press <1> to continue.
(DK, RF are not allowed)

XADM_R01B

In order to reduce the number of questions on today’s survey, Statistics Canada would like to link information from this interview with your information from the 2008 Canadian Community Health Survey.
INTERVIEWER : Press <1> to continue.
(DK, RF are not allowed)

XADM_Q01

The linked information will be kept strictly confidential and used only for statistical purposes.
Do we have your permission?
1 Yes
2 No (Go to XADM_R03)
DK, RF (Go to XADM_R03

XADM_D02

If PROVE = 24, SHAREE = "provincial ministries of health and the "Institut de la Statistique du Québec"".
Otherwise, SHAREE = "and provincial ministries of health".

XADM_R02

Statistics Canada would like your permission to share the linked survey data, that is your information from today’s interview and your information from the Canadian Community Health Survey, with the Public Health Agency of Canada, Health Canada ^SHAREE.
INTERVIEWER : The Public Health Agency of Canada is a federal government department responsible for promoting and protecting the health and safety of Canadians.
Press <1> to continue.
(DK, RF are not allowed)

XADM_Q02

Information from both surveys will be kept confidential and used only for statistical purposes.
Do you agree to share the linked information?

INTERVIEWER : Personal identifiers such as name, address, telephone number, and health number will not be provided to the Public Health Agency of Canada or to Health Canada.
Press <1> to continue.
1 Yes (Go to XADM_END)
2 No (Go to XADM_R04)
DK, RF (Go to XADM_R04)

XADM_R03

Although you do not agree to link the information collected in today’s interview to the 2008 Canadian Community Health Survey, we would like your permission to share only the information collected today with the Public Health Agency of Canada, Health Canada ^SHAREE.
INTERVIEWER : The Public Health Agency of Canada is a federal government department responsible for promoting and protecting the health and safety of Canadians.
Press <1> to continue.
(DK, RF are not allowed)

XADM_Q03

Your personal identifiers such as name, address and telephone number will not be shared. All information will be kept confidential and used only for statistical purposes.
Do you agree to share the information from today’s interview?

INTERVIEWER : The information that is shared will not be linked to their previous Canadian Community Health Survey interview or to administrative data.
1 Yes
2 No
DK, RF
Go to XADM_END

XADM_R04

Although you do not agree to share the linked survey information, we would like your permission to share only the information collected in today’s interview with the Public Health Agency of Canada, Health Canada ^SHAREE.
INTERVIEWER : The Public Health Agency of Canada is a federal government department responsible for promoting and protecting the health and safety of Canadians.
Press <1> to continue.
(DK, RF are not allowed)

XADM_Q04

Your personal identifiers such as name, address and telephone number will not be shared. All information will be kept confidential and used only for statistical purposes.
Do you agree to share the information from today’s interview?

INTERVIEWER : The information that is shared will not be linked to their previous Canadian Community Health Survey interview or to administrative data.
1 Yes
2 No
DK, RF

XADM_END