The patient–oriented Canadian Cancer Registry (CCR) evolved from the event–oriented National Cancer Incidence Reporting System (NCIRS). Beginning with cases diagnosed in 1992, incidence figures collected by Provincial and Territorial Cancer Registries (PTCRs) have been reported to the CCR, which is maintained by Statistics Canada. Established as a person–oriented database, the CCR includes mechanisms for updating and clearing death records and is linked to provincial and territorial databases to help track patients across Canada who have been diagnosed with tumours.
The CCR System Guide has been separated into three parts to improve access and navigation. Although the three parts are separate, the three documents should be used in conjunction with each other. The different sections of the three–part CCR System Guide often refer to each other. The CCR System Guide is now composed of:
Part I: CCR Data Dictionary provides explanation on the reporting of data, including the scope and detailed information on the input and derived variables.
Part II: CCR Data Loading and Tabulation Master Files provides information on the data loading process, including in–depth descriptions of the various edits performed on the data. Part II also provides information on the Tabulation Master Files, including the scope, content and layout. Part II is followed by several appendices that contain supporting information such as explicit code set tables, guidelines to assist coders and other supportive information.
Part III: CCR Core Reference Tables provides detailed information on the CCR Core Reference Tables such as descriptions of the tables, their usage and any revisions made. Part III is an accompanying document to the CCR Reference Tables 2010.xls.
Appendix A – Core reference Tables – Describes in detail all CCR Core Reference Tables. An Excel spreadsheet is also included with supporting documentation about the tables.
Item (s) | Description of change | Effective (reference year) |
---|---|---|
Eligible ICD-O-3 histology codes | New codes added and changes made to behaviour codes as per the 2008 WHO Classification of Tumours of Haematopoietic and Lymphoid Tissues. | 2010 |
Valid site and laterality combinations | Corrections to remove zeroes where zero was not an acceptable laterality code prior to 2007. Paired site: midline tumour: To allow code 5 and disallow code 9 for sixteen sites identified in the NAACCR edit. | 2010 |
CS version 1st | Table Name changed - CS version 1st to CS version input original | 2010 |
Core reference tables – new table | New core reference table - CS version input current | 2010 |
Item (s) | Description of change | Effective (reference year) |
---|---|---|
Core reference tables | New core reference table - Invalid Site, Histology and Behaviour Combinations. | 2008 |
Core reference tables | Eligible Standard Geographic Classification (SGC) Codes from 2006 to 2010. | 2006 |
CCR core scope | Updates to exception in topographies, and additions in topographies. | 2007 |
Invalid Site and Histology combinations | Content added: Year of diagnosis (lower and upper bound) specified further. Combinations added : combinations of site and histology considered invalid following NAACCR guidelines. Combinations updated: combinations of site and histology updated following NAACCR guidelines. |
2007 |
Invalid histology and behaviour combinations | Content added: Year of diagnosis (lower and upper bound) specified further. Addition of codes – addition of histology/behaviour combinations. |
2007 |
Valid Site and Laterality combinations | Laterality codes new CCR meaning (see T19 in Data Dictionary). Laterality codes removed. Laterality codes added. Laterality codes changed. Content added: Added notes column to provide additional information on corresponding site and laterality combination. |
2007 |
Equivalent Histologies | Combinations updated – Highest histology (lower bound) adjusted. Content added: Year of diagnosis (lower and upper bound) specified further |
2007 |
Eligible CS Version 1st | New table added. | 2007 |
PTCRs employees are encouraged to bring forward any questions by contacting one of the following:
Core reference tables
This section describes all core reference tables, namely:
These tables can be found in the spreadsheet named CCR reference tables 2010.xls.
Content
This code set contains:
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab country codes prior to 1996.
Code descriptions found in this document are given for indication purpose only. Please refer to the official ISO publication for exact code description.
Used by
Edit process: PVAL12 and PVAL15.
Year | Description |
---|---|
2004 | Addition of codes: On October 28, 2004, the director of the NWT Cancer Registry authorized the transfer of ownership of the 1992-1998 cancer patients on the Canadian Cancer Registry database whose addresses fall within the current geographic boundaries to the Nunavut Territories. In order to implement this change, Statistics Canada special code for Nunavut (962) has been added to the Eligible province/territory or country codes prior to 1996. |
Content
This code set contains:
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab country codes in 1996 and after.
Code descriptions found in this document are given for indication purpose only. Please refer to the official ISO publication for exact code description.
Used by
Edit process: PVAL12 and PVAL15.
Year | Description |
---|---|
1999 | Addition of codes: 962 (Statistics Canada special code for Nunavut) has been added to reflect the creation of Nunavut territory. |
1997 | Addition of codes: 231 (ISO-1997 code for Ethiopia) has been added to reflect changes in ISO Country codes in 1997. 970 (Statistics Canada special code for Former USSR) and 971 (Statistics Canada special code for Former Czechoslovakia) have been added to comply with some Provincial Vital Statistics Offices. |
Content
This code set contains:
Note: Although most codes are 4 digits long, some codes are 3 digits long (for example ICD-9 175 Malignant neoplasm of male breast).
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab ICD-9 Cancer codes.
Code descriptions are given for indication purpose only. Please refer to the official ICD-9 publication for exact code description.
Used by
Edit process: TVAL13.
Year | Description |
---|---|
2004 | Deletion of code: 1759: Non-ICD-9 code for 'Malignant neoplasm of male breast'. This code has been introduced to CCR in 1992 by ICD-O-2 to ICD-9 conversion program. Corresponding tumours have been recoded to ICD-9 code '175'. |
Content
This code set contains:
All ICD-O-2/3 topography codes (C00 to C80) including corrections from applicable errata.
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab ICD-O-2-3 Topography codes.
Code descriptions are given for indication purpose only. Please refer to the official ICD-O-3 publication for exact code description.
Used by
Edit process: TVAL15.
Year | Description |
---|---|
2004 | Deletion of codes:
|
Content
This code set contains:
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab ICD-O-2 histology codes.
Code descriptions are given for indication purpose only. Please refer to the official ICD-O-2 publication for exact code description.
Used by
Edit process: TVAL16.
Year | Description |
---|---|
2004 | Addition of code: 0000: 'Not reported (Histology reported in field T21)'. CCR Specific code added to maintain referential integrity. |
1998 | Addition of codes: 9828, 9871, 9872, 9873 and 9874: New codes used in North America only. |
1997 | Addition of codes: 9688, 9708, 9710, 9715, 9716 and 9717: New codes used in North America only. |
1996 | Addition of codes: 8148: New code used in North America only. |
Content
This code set contains:
All ICD-O-3 Histology codes (8000 to 9989) including corrections from applicable errata.
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab ICD-O-3 histology codes.
Code descriptions are given for indication purpose only. Please refer to the official ICD-O-3 publication for exact code description.
Used by
Edit process: TVAL21.
Year | Description |
---|---|
2010 | New codes and changes made to behaviour codes as per the 2008 WHO Classification of Tumours of Haematopoietic and Lymphoid Tissues. |
Content
This code set contains:
Note: Although most of the codes are 4 digits long, some are 3 digits long.
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab ICD-9 UCOD.
Code descriptions are given for indication purpose only. Please refer to the official ICD-9 publication for exact code description.
Used by
Edit process: PVAL17.
Year | Description |
---|---|
Not applicable | Not applicable |
Content
This code set contains:
Note: Although most of the codes are 4 characters long, some are 3 characters long.
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab ICD-10 UCOD from 2000 to 2002.
Code descriptions are given for indication purpose only. Please refer to the official ICD-10 publication for exact code description.
Used by
Edit process: PVAL17.
Year | Description |
---|---|
Not applicable | Not applicable |
Content
This code set contains:
Note: Although most of the codes are 4 characters long, some are 3 characters long.
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab ICD-10 UCOD in 2003 and after.
Code descriptions are given for indication purpose only. Please refer to the official ICD-10 publication for exact code description.
Used by
Edit process: PVAL17.
Year | Description |
---|---|
Not applicable | Not applicable |
Content
This code set contains:
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab SGC codes from 1992 to 1995.
Code descriptions are given for indication purpose only. Please refer to the official Standard Geographic Classification – 1991 for exact code description.
Used by
Edit process: TVAL8.
Year | Description |
---|---|
2004 | Alteration of codes: On October 28, 2004, the director of the NWT Cancer Registry authorized the transfer of ownership of the 1992-1998 cancer patients on the Canadian Cancer Registry database whose address fall within the current geographic boundaries to the Nunavut Territories. In order to implement this change, CD and CSD belonging to NWT but physically within the actual Nunavut boundaries have been migrated from NWT (61) to Nunavut (62). Thus, SGC codes starting with 6104, 6105 and 6108 (excluding 6208095- Holman) have been respectively updated to 6204, 6205 and 6208. Holman becomes 6107095. |
Content
This code set contains:
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab SGC codes from 1996 to 2000.
Code descriptions are given for indication purpose only. Please refer to the official Standard geographic classification – 1996 for exact code description.
Used by
Edit process: TVAL8.
Year | Description |
---|---|
2004 | Alteration of codes: On October 28, 2004, the director of the NWT Cancer Registry authorized the transfer of ownership of the 1992-1998 cancer patients on the Canadian Cancer Registry database whose address fall within the current geographic boundaries to the Nunavut Territories. In order to implement this change, duplicate CD and CSD related to NWT and Nunavut have been deleted: SGC codes starting with 6104, 6105 and 6108 (excluding 6208095– Holman which becomes 6107095). |
1999 | Addition of codes: Due to Nunavut creation, new SGC codes have been added based on existing NWT SGC codes that fall within the geographic boundaries of the Nunavut Territories. SGC codes starting with 6204, 6205 and 6208 have been created based on their corresponding NWT SGC codes (SGC codes starting with 6104, 6105 and 6108 - excluding 6208095– Holman which becomes 6107095). Since corresponding SGC for NWT are still valid from 1996-1999, SGC codes starting with 6104, 6105 and 6108 have not been deleted. |
Content
This code set contains:
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab SGC codes from 2001 to 2005.
Code descriptions are given for indication purpose only. Please refer the to official Standard Geographic Classification – 2001 for exact code description.
Used by
Edit process: TVAL8.
Year | Description |
---|---|
Not applicable | Not applicable |
Content
This code set contains:
Location
The official code set can be found in the document CCR Reference Tables 2010.xls under the tab SGC codes from 2006 to 2010.
Code descriptions are given for indication purpose only. Please refer to the official Standard Geographic Classification – 2006 for exact code description.
Used by
Edit process: TVAL8.
Year | Description |
---|---|
2006 | New table |
Content
This code set contains:
All Census Sub-Division Unique Identifiers (CSDuid) with their associated Census Tract Unique Identifiers (CTuid) from the Geographic Attribute File – 1991.
For implementation reasons, [CSDuid] not associated to any [CTuid] are associated with a CCR Specific [CTuid] of '000000.00' which represents a location outside of a Census Metropolitain Area.
CCR Specific codes:
For implementation reasons, all of the above codes are associated with a CCR specific [CSDuid] code of '0000000'. This [CSDuid] code has no meaning.
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab census tracts from 1992 to 1995.
Used by
Edit process: TVAL9 and TCOR3.
Year | Description |
---|---|
Not applicable | Not applicable |
Content
This code set contains:
All Census Sub-Division Unique Identifiers (CSDuid) with their associated Census Tract Unique Identifiers (CTuid) from the Geographic Attribute File – 1996.
For implementation reasons, [CSDuid] not associated to any [CTuid] are associated with a CCR Specific [CTuid] of '000000.00' which represents a location outside of a Census Metropolitain Area.
CCR Specific codes:
For implementation reasons, all of the above codes are associated with a CCR specific [CSDuid] code of '0000000'. This [CSDuid] code has no meaning.
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab Census tracts from 1996 to 2000.
Used by
Edit process: TVAL9 and TCOR3.
Year | Description |
---|---|
Not applicable | Not applicable |
Content
This code set contains:
All Census Sub-Division Unique Identifiers (CSDuid) with their associated Census Tract Unique Identifiers (CTuid) from the Geographic Attribute File – 2001.
For implementation reasons, [CSDuid] not associated to any [CTuid] are associated with a CCR Specific [CTuid] of '000000.00' which represents a location outside of a Census Metropolitain Area.
CCR Specific codes:
For implementation reasons, all of the above codes are associated with a CCR specific [CSDuid] code of '0000000'. This [CSDuid] code has no meaning.
Location
The official code set can be found in the document CCR reference tables 2010.xls under the tab census tracts from 2001 to 2005.
Used by
Edit process: TVAL9 and TCOR3.
Year | Description |
---|---|
Not applicable | Not applicable |
Description
This table contains the necessary information to assess whether a tumour is included within the CCR core scope or not. Since the scope of the CCR may change based on the date of diagnosis, a date range qualifies each topography, histology and behaviour combination. See Section 1.1.2.1 CCR core scope for more details.
Content
Usage
Tumour where the reported ICD-O-2/3 Topography, ICD-O-3 histology/behaviour and the year of date of diagnosis combination cannot be found within the corresponding ranges in the table is considered to be outside the CCR core scope.
Limitations
This table should not be used to validate ICD-O-2/3 topography nor the ICD-O-3 histology codes since corresponding ranges include invalid values.
Location
The table can be found in the document CCR reference tables 2010.xls under the tab CCR Core Scope.
Used by
Edit process: TCOR9.
Year | Description |
---|---|
2007 | Update: Exclusion of topographies C53._ (cervix) and C61.9 (prostate) for all histologies, for ICD-O-3 behaviour code 2 in situ/intraepithelial/non-invasive. Addition of pituitary, craniopharyngeal duct and pineal gland (topographies C75.1, C75.2, C75.3) with behaviour codes of 0. |
2004 | New table |
Description
This table has been created by Statistics Canada in cooperation with the Ontario cancer treatment and research foundation and the Fichier des Tumeurs du Québec. It has been designed to convert an ICD-9 Cancer code to ICD-O-2/3 topography and morphology and assess the coherence between:
For both cases (conversion and coherence checking), strong limitations are applicable. See 'Limitations' below.
The ICD-9 to ICD-O-2 conversion is similar to the ICD-O-1 to ICD-O-2 conversion. The ICD-9 block of codes for primary malignant neoplasms is similar to the ICD-O-1 site codes and can be transformed into ICD-O-2 site codes. However, in this conversion, the ICD-9 non-malignant tumour codes are also converted. This conversion also provides a morphology code (which is more specific than the general “8000” code) for 104 of the 450 ICD-9 codes listed (Ex. ICD-9 code 200.0 converts to ICD-O-2/3 topography of C77.9 and ICD-O-2 Histology of 9593 and ICD-O-2 Behaviour of 3).
Content
This table contains converted ICD-O-2/3 topography, ICD-O-2 histology and behaviour for every CCR eligible ICD-9 cancer code.
This table contains the following fields:
Usage
Limitations
Location
The table can be found in the document CCR reference tables 2010.xls under the tab Conversion ICD-9 to ICD-O-2.
Used by
Year | Description |
---|---|
2004 | Update: ICD-9 Cancer Code '232.8' is now associated to ICD-O-2/3 Topography code 'C44.8' instead of 'C44.9' (typo in old conversion table). Addition: ICD-9 Cancer Codes '2731', '2732', '2733', '2849', '2850' and '2898' have been added since the corresponding diseases are now considered to be related to neoplasm. |
Description
This table is based on the "Conversion Of Neoplasms By Topography And Morphology From The International Classification Of Diseases For Oncology, Second Edition To International Classification Of Diseases For Oncology, Third Edition" (14/06/2001) produced by the Surveillance, Epidemiology and End Results Program (SEER) from National Cancer Institute (NCI). In some cases, PTCR conversion has been modified to meet Canadian specific requirements. The exceptions are documented in the table.
Content
This table contains converted ICD-O-3 histology and ICD-O-3 behaviour for every unique CCR eligible ICD-O-2 histology and behaviour combination. It also contains duplicate ICD-O-2 histology/behaviour entries when conversion depends on ICD-O-2/3 topography.
For coherence checking between reported ICD-O-2 and ICD-O-3 values (when applicable), this table also contains alternative conversion options.
This table contains the following fields:
Usage
Limitations
Location
The table can be found in the document CCR reference tables 2010.xls under the tab conversion ICD-O-2 to ICD-O-3.
Used by
Year | Description |
---|---|
2004 | Update Table has been reconstructed based on PTCR specification as of 14/06/2001. CCR exceptions have been documented. Addition Table now incorporates conversion alternatives. |
Description
This table contains invalid ICD-O-2/3 topography (site) and ICD-O-3 histology codes combinations.
Content
Usage
Tumours where the ICD-O-2/3 topography and ICD-O-3 histology combination is found within the corresponding ranges are invalid. Others are valid.
Limitations
This table should not be used to validate ICD-O-2/3 topography nor the ICD-O-3 histology codes since corresponding ranges include invalid values.
Location
The table can be found in the document CCR reference tables 2010.xls under the tab invalid site and histology.
Used by
Edit process: TCOR10.
Year | Description |
---|---|
2007 | Content added: Combinations added: Peripheral nerves (ICD-O-2/3: C470-C479) – Melanomas (ICD-O-3: 8720-8790) Combinations updated: Bone (ICD-O-2/3: C400-C419) – Carcinomas (except squamous cell) (ICD-O-3: 8010-8060) |
2004 | Combination removed: |
Description
This table contains invalid ICD-O-3 histology and ICD-O-3 behaviour code combinations for every eligible ICD-O-3 histology code. For ease of reading, this table has not been normalized (ICD-O-3 behaviour column contains comma separated lists of invalid behaviour codes).
Contents
Usage
Tumours where the ICD-O-3 histology and ICD-O-3 behaviour codes combination is found within the table are invalid. Others are valid.
Location
The table can be found in the document CCR reference tables 2010.xls under the tab Invalid histology and behaviour.
Used by
Edit process: TCOR11.
Year | Description |
---|---|
2007 | Addition of codes:
The following Histology/Behaviour combinations have been added to keep CCR synchronized with NAACCR Meta-files: CCR synchronized with NAACCR Meta-files:Neoplasm (8000/2) Tumour cells (8001/2) Malignant tumour, small cell type (8002/2) Malignant tumour, giant cell type (8003/2) Malignant tumour, spindle cell type (8004/2) Clear cell tumour (8005/2) Squamous intraepithelial neoplasia, grade III (8077/3) Serous cystadenoma, borderline malignancy (C56.9) (8442/0,2,3) Papillary cystadenoma, borderline malignancy (C56.9) (8451/0,2,3) Serous papillary cystic tumour of borderline malignancy (C56.9) (8462/0,2,3) Mucinous cystic tumour of borderline malignancy (C56.9) (8472/0,2,3) Papillary mucinous cystadenoma, borderline malignancy (C56.9) (8473/0,2,3) Pilocytic astrocytoma (C71._) (9421/0,1,2) |
2004 | Addition of codes: |
Description
This table contains valid ICD-O-2/3 topography site and laterality codes combinations for every eligible ICD-O-2/3 topography code. Since valid site and laterality combinations may change based on the date of diagnosis, a date range qualifies each combination. For ease of reading, this table has not been normalized (Laterality column contains comma separated lists of valid laterality codes).
Content
Usage
Tumours where the ICD-O-2/3 topography and laterality codes combination is found in the table for the appropriate year of diagnosis range are valid. Others are invalid.
Location
The table can be found in the document CCR reference tables 2010.xls under the tab valid site and laterality.
Used by
Edit process: TCOR12.
Year | Description |
---|---|
2010 | Laterality codes changed; Corrections were made to remove zeroes where zero was not an acceptable laterality code prior to 2007 for sites C398; C418; C638; C688; C728. Laterality codes added: Paired site: midline tumour, code 5 was added for sixteen sites identified in the NAACCR edit. Paired brain and CNS sites (C700, C710 - C714 and C722-C725) as well as paired skin sites (C441-C443 and C445 - C447). |
2007 | Laterality codes have a new CCR meaning. See T19 in the Data dictionary for additional information. Laterality codes removed: Laterality codes added: Laterality code ‘3’ has been added to several sites (ICD-O-2/3: C70.0, C71.0-C71.4, and C72.2-C72.5). Laterality codes changed: Content added: |
2004 | Table structure: A time range has been added to support changes to valid site and laterality combination based on the Date of Diagnosis. (for example: ovary before and after 1999) Laterality codes removed:
Laterality codes added: |
Description
This table contains equivalent ICD-O-2/3 topography codes for overlapping and unspecified sites.
Content
Usage
Limitations
This table should not be used to validate ICD-O-2/3 topography since corresponding range includes invalid values.
Location
The table can be found in the document CCR reference tables 2010.xls under the tab equivalent topographies.
Used by
Edit process: DIM6.
Year | Description |
---|---|
2004 | Table has been updated to better reflect table usage notes. No subject matter related impact. |
Description
This table contains equivalent ICD-O-3 histology codes. This table is used for assessing multiple primary tumours for the CCR Tabulation Master File (TMF).
Content
Usage
Limitations
This table should not be used to validate ICD-O-3 Histology since corresponding ranges include invalid values.
Location
The table can be found in the document CCR reference tables 2010.xls under the tab equivalent histologies.
Used by
Edit process: DIM6.
Year | Description |
---|---|
2007 | Combinations updated Highest histology (lower bound) was adjusted for two equivalent histology code ranges. Change is highlighted in yellow within the table. Content added: Year of diagnosis (Lower and Upper Bound) is specified to indicate the time frame for when the corresponding equivalent histologies are valid. |
2004 | Table has been updated to better reflect table usage notes. No subject matter related impact. |
Description
This table contains eligible version numbers that can be used to code Collaborative staging fields for CSV1 and CSV2.
Content
Usage
Location
The table can be found in the document CCR reference tables 2010.xls under the tab CS version input original.
Used by
Edit process: TVAL52.
Year | Description |
---|---|
2010 | Table Name changed - CS version 1st to CS version input original, Version numbers for CSV2 added to table. |
2007 | New table |
Description
This table contains eligible version numbers that can be used to code Collaborative staging fields for CS version 2.
Content
Usage
Location
The table can be found in the document CCR reference tables 2010.xls under the tab CS version input original.
Used by
Edit process: TVAL27-TVAL41, TVAL52, TVAL63, TVAL64.
Year | Description |
---|---|
2010 | New table |